For World ME Awareness Day, I'm reposting this interview I did last month with Guardian columnist George Monbiot about his scathing criticism of the biopsychosocial approach to ME/CFS and Long Covid:
virology.ws/2024/04/18/tri…

On this #MEAwarenessDay , I am preparing my talk for the #UniteToFight2024 to share our research and insights on #longCOVID and #PAIS . #MECFS is a serious health crisis that requires urgent attention and action on a global scale. Help us raise awareness today.…

May is #StrokeAwarenessMonth and that means it’s time to learn about #Spasticity

Troubles is out on all platforms now!

Always wanted to make a beat with this sample, special one for me for a number of reasons!

Click the link in my bio to buy/listen/watch!

Good chance we could chart with this one which would be the first time in history a song about ME/lyme…

Understanding the potential roots and drivers of chronic illnesses plays an important role in advancing our treatment and knowledge of post-acute infection syndromes. Join us on 5/21 for a live virtual education session about persistent pathogens. Links to tune in, in the thread.

The PolyBio Symposium is just a week away!

Scientists from our #LongCovid Research Consortium will give 10 min lightning talks on their research/clinical trial projects: polybio.org/spring-2024-sy…

I spoke earlier today with betsy ladyzhets 📊 and Miles W. Griffis about their plans for The Sick Times, which covers Long Covid and related illnesses:
virology.ws/2024/05/10/tri…

The stigma is real. Thanks to Dianna Cowern and Kyle for speaking up, it’s the only way. I hope we find ways to ease the suffering soon. People have NO FUCKING idea what severe and very severe #MECFS entails.

I was honored to write this story about RemissionBiome MECFS/LongCovid Self-Experiment and the growing patient-led research trend for Science News. Very grateful to the Remission Biome folks and other researchers who talked to me for the piece!

Y’all are incredible. Already over 100 🥹 thank you! Some exciting new educational initiatives coming soon!

Calling all folks who have, care about or treat #LongCOVID , #MECFS and chronic #lyme and other PAIS: we are planning out a new live education initiative but first we need folks to subscribe to our YouTube channel. We need 100 subscribers to be able to broadcast. Please help!

#MECFS is unimaginably isolating, especially for severe patients like Dianna. The disease just doesn't make sense; even for me, it's taken a year of caring for her every day to start to understand.

To get a sense, Dianna has spent the last year and a half in her room, unable to…

Spent hours of my admin (non-clinical) time today doing letters of appeal and also letters of causation for persons with #LongCovid .

I am tired fighting the system.

Please do this if you haven’t already!! This is a crucial #LongCovid advocacy action to potentially receive significant funding.

I spoke with members of the NIH RECOVER oversight committee in a meeting that was going to include the RECOVER-ENERGIZE PI before it didn't. My input was to include pacing in an adaptive design to ensure participants could move in and out of exercise groups if they crashed.

Neural Interfaces and BCI Community starting soon! Mount Sinai Health System Icahn School of Medicine at Mount Sinai faculty are leading the way in #Innovation 💡🧠🤔
#AANS2024 #WhatMatters #BCI

There is a lie going round that children need to be sick to be well.
⚠️It's a lie⚠️