Only a few more days to catch our exhibition of artwork done by people with #LongCovid and #MECFS ! We will try to curate it digitally afterwards, but if you do have a chance to catch it 'live' please do, it's so well worth it!

Minister for Social Protection,
Heather Humphreys Heather Humphreys
'Vigourously opposed making Covid-19 an occupational illness,'

It is disgraceful that Ireland remains one of only two EU member states who have not implemented the recommendation.
rte.ie/news/business/…

forbes.com/sites/anuradha…
See our response in relation to the attention grabbing headline of this article. #LongCovid #anxiety #misrepresentation #LongCovid Kids

Have to admit; part of me resents how other people get to have normal lives Bank holiday's a treat for ME not cause of extra time to socialise but cause it'll only be 4 dys next wk, not 5, that I've to ignore the rest my body needs & care for my kids while my husband works
#pwME

An important thread by Mark Faghy pointing out that there are STILL researchers amongst us who are driving the harmful narrative of GET and CBT for LongCOVID treatment. It is time to point them out and to stand up against such outdated and frankly damaging rhetoric.

A Long Thread 🧵…

Astounded to sit in a session at the @ACSM conference where high profile researchers/medical professionals are advocating for the role of GET and CBT in treating #LongCOVID

We now want to get the attention of two specific media icons, John Oliver and Jon Stewart, to see who will be the first to cover the #GreatestMEdicalScandal . #ME #ME CFS #MillionsMissing
Here’s how you can participate (image c/o Julie 🚀🌕 for LC/ME research 😷)...

Another example, this time in Dublin, where #pwME are put at risk of further deterioration of their baseline because staff do not understand the basics of care for people with #MyalgicEncephalomyelitis

#GreatestMEdicalScandal
#ExposeMENow
#SevereME

The M.E. Community ask for your assistance with their important call for a protocol to support those with Severe M.E.
Please sign their
Open Letter to the HSE.

organise.network/s/b71cbfc29fe7

#Call4Protocol4SevereME

Years into Covid-19 pandemic&that immunity we were promised is not going well.
Estimated half of the Australian population has had Covid in the past 6 months.
How many are repeat infections?
Are we really just accepting catching this virus every year like it’s normal? It’s not

🧵
BBC: #LongCovid course is 'exploiting people', says ex-GB rower

Description from Science for ME Science for ME online forum update:

'Former Team GB rower Oonagh Cousins was offered a free course of the contested alternative treatment 'Lightning Process' (LP) for her #longCovid .

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Morning all! I am thinking of setting up a group for carers of people with severe ME. A place to come together to support each other, advocate and share information. I think it should be across the country. Would people be interested in joining? #pwME #severeME #MECFS #carer