π£ Are you conducting/planning research in to #LongCovid ?
πBook a slot with our newly launched Research Involvement Consultancy!π
Ensure your study is relevant, robust and keeps the patient voice at the centre.
More info.: tinyurl.com/longcovidRIC
#PatientInvolvement
Why does #PatientInvolvement matter in research? Valentina (postdoc researcher) & Claas (chairman NF Kinder) discussed how patients can have fruitful discussions in #FundamentalResearch on lung fibrosis.
π Watch the video here: patient-engagement.eu/stories
#PERC #PatientEngagement
On the #ClinalTrialsDay we want to raise awareness of the importance of clinical trials for advances in research and cancer treatment.
π rb.gy/uu35yu
#CCE_DART #PatientInvolvement
Vall dβHebron Institute of Oncology (VHIO) Gustave Roussy Istituto Tumori NCT Heidelberg DKFZ CRUK Cambridge Centre The Netherlands Cancer Institute Karolinska Institutet
So exciting to see our reflections on our #PatientInvolvement project published on Cancer News Cancer Research UK! Stay tuned for parts 2 & 3! UCL Medical Physics & Biomedical Engineering UCL CMIC CRUK RadNet City of London
A big thank you to everyone who helped make the Inaugural Alleviate and #CAPEConference an 'exceptional success.' Read all about it here β¬ π«Ά
dundee.ac.uk/stories/inauguβ¦
UoD Medicine Advanced Pain Discovery Platform Health Data Research UK (HDR UK) Health Informatics Centre (HIC)
#painresearch #patientinvolvement
Spending the next 2 days at the beautiful V&A Dundee attending the Alleviate and CAPE Conference and hearing about the progress of these important pain research projects #alleviatehub #CAPEConference #painresearch #patientinvolvement #APDP
Our co-produced #Exchanges art card resource inspires deep conversations about #Parkinsons Research & lived experience of #Parkinsons .
Join us WPC 2026 & pick up a pack: poster P45.32,Wed 5 Jul
Funder: Medical Research Council
#WPC2023 #PatientInvolvement #carers Bill Carton Joy Milne
βWe all need each otherβ
Letβs get together WPC 2026 to have deeper conversations about #Parkinsons & #Parkinsons Research using our co-produced #Exchanges art card resource
Pick up a pack: poster P45.32,Wed 5 Jul
Funder:Medical Research Council
#WPC2023 #PatientInvolvement Dan
βYouβre not aloneβ
Join us WPC 2026 & use our co-produced #Exchanges art card resource to support new connections & deeper conversations on #Parkinsons & #Parkinsons Research.
Pick up a pack: posterP45.32,Wed 5 Jul
Funder: Medical Research Council
#WPC2023 #PatientInvolvement @nurkocatur
βYou inspire me, your really doβ
Weβre meeting inspiring people WPC 2026 & our co-produced #Exchanges cards are stimulating great #Parkinsons #Parkinsons Research conversations. Excited to hear how you use them!
Funder: Medical Research Council
#WPC2023 #PatientInvolvement Shalini Agarwal
Engaging discussions during the PPIE Interactive session at today's Alleviate & CAPE Conference #alleviatehub #CAPEconference #painresearch #patientinvolvement #apdp
Connecting/networking and learning are what most of the ~ 150 participants are looking to achieve at the #PEOF2023 meeting. #PatientEngagement #patientinvolvement #patientadvocacy #patientvoice
Patient and Public Involvement Manager Sam wants to hear your stories! We want to add more stories to our website β both to help fellow patients feel less alone, and to show the real people who benefit from research into bowel conditions.
#ppi #bowelresearch #patientinvolvement
Barriers to involving patients in #healthtechnologyassessment at #PEOF 2023
ππ» lack of awareness in concerned patients
ππ» lack of βΉοΈ on how to get involved, capability & capacity
ππ» #drugevaluation is not a priority activity
#patientinvolvement #patientengagement #patientvoice
π Introducing the DATAMIND Glossary: a valuable resource to simplify #mentalhealth #datascience #research terminology, created with substantial contributions from our Patient and Public Group.
Discover it here: datamind.org.uk/glossary/
#DataAnalysis #PatientInvolvement
#conflictofinterest is one of the hot but often neglected topics in #patientinvolvement in regulatory aspects and #HTA . At #PEOF 2024 we have a deep dive to understand the CoI journey. How can we manage it and mitigate implications?
Delighted to be representing Irish Cancer Society and flying the PPI flag at the News IACR EACR AACR conference #patientinvolvement #irishcancerresearch
Today we are in the main entrance at UHCW NHS Trust to give an insight on Involvement.
Would you like to be a Patient Partner, Do you have a support group, who would like to her from our services or share your experiences.
If so, pop down and come and talk to us.
#patientInvolvement
'Medical management of painful achalasia: a patient-driven systematic review' ow.ly/7Jk450QPpC9
#PPI #PatientInvolvement #Achalasia