CAPA
@CAPA_Arthritis
The Canadian Arthritis Patient Alliance (CAPA) is a grass-roots, patient-driven, independent, national advocacy organization with members across Canada.
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https://linktr.ee/capa_arthritis 31-10-2015 03:58:46
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May 12 is #MyalgicEncephalomyelitis #MECFSAwarenessDay .
ME is a disabling illness that causes symptoms including extreme fatigue and worsening of symptoms after exertion (PEM). There is no cure, and patients face stigma as they search for diagnoses.
mayoclinicproceedings.org/article/S0025-…
So #PatientEngagement peeps - this might interest you. Fun fact - the SPOR Evidence Alliance had a priority setting activity last year to prioritize 20 project ideas submitted by patients/the public and those that were finded are co-led by patients/public. 1/
Thanks CAPA & yes, survey is still open. If you or someone you know, has recently completed their rehab after a hip or knee replacement, we would love them to do our 🇨🇦survey. Arthritis Society Canada JointHealth Bone & Joint Canada Canadian Orthopaedic Association
A UBC research team, led by Dr. Marie Westby is studying patient experiences and the
quality of care during their rehab after total joint replacement
Take the survey here: buff.ly/3WziOdx
#totalkneereplacement #totalhipreplacement #osteoarthritis
Centre for Aging SMART Marie Westby, PT, PhD
Can women with #RheumatoidArthritis and #Sjogrens have children?
I wore my patient hat to share my pregnancy experience.
CAPA
Is posting the full webinar on YT soon!
Arthritis Research Canada
Dr Mary Abigail De Vera 🇨🇦🇵🇭
instagram.com/reel/C6lzK5Ru9…
A fine example of how we can learn to do #patientengagement thoughtfully and well. So much to learn from others like Dr. Dawn Richards, PhD to make engagement a critical part of medicines development in Canada.
New blog post!
Read about Cristina Montoya RD | Sjögren's Advocate's experience navigating pregnancy and rheumatic conditions here buff.ly/4a1EaTG, just in time for our webinar on Pregnancy and Arthritis tomorrow at 1 PM EDT.
If you haven't registered yet, use this link! buff.ly/49MyIEg
How was your road to becoming pregnant with inflammatory arthritis? I'm joining the patient panel for this webinar on pregnancy and #arthritis ?
This month we are sharing videos about #RheumatoidArthritis (RA) and related health conditions! Get a sneak peak here of new videos by our team of rheumatologists as they share research & treatment info for people with RA: youtube.com/playlist?list=… CAPA Arthritis Society Canada