FREE CPD....FREE LEARNING

#Seating #Posture #Dementia #Occupationaltherapy

Join me & Vivid.Care for this often overlooked aspect in Dementia care for all parties

Vivid will be donating my fee to Factor-H's Caregivers project

vivid.care/our-resources/…

News | New network launched to advance research into Huntington’s disease

👉 le.ac.uk/news/2024/apri…

#CitizensOfChange | Huntington's Disease Association EHDN News

Wales Gene Park UCL Huntington’s Disease Centre Factor-H EHDN News Journal of Huntington's Disease We celebrate National Occupational Therapy Month in April, a time to recognize occupational therapists and the meaningful impact they have on the lives of their patients, including those of us with Huntington's Disease. Thank You! 🎉

EHDN's first podcast is live!
Listen to our expert speakers Dr Lauren Byrne Mayke Oosterloo & Oliver Quarrell on juvenile and paediatric HD: youtube.com/@european_hd_n…
podcasters.spotify.com/pod/show/ehdn
Subscribe to all our podcasts here: youtube.com/@european_hd_n…
#huntingtonsdisease

Huntington's disease, a rare genetic disorder, results from faulty genes in the DNA. Our Young Adults guide offers support and information for those affected, aiding awareness and understanding. loom.ly/-wmmatM

Our first Leicestershire Huntington's Disease Network launch event is going to happen 🎉
Take a look at the website page to get more info and join us! University of Leicester Huntington's Disease Association EHDN News
tickettailor.com/events/univers…

youtu.be/fGiNoL0jJLM?fe… #HDGratitudeDay Please watch and share this heartwarming video of international support x Factor-H Huntington's Disease Association of Ireland HDSA Neurological Alliance of Ireland

Exciting conference coming up from the European Academy of Neurology #brain #neurology #ean2024

APPLICATIONS CLOSE APRIL 30! You have 4 weeks left to apply to this life changing experience to attend the North American HDYO Camp. Apply today at HDYO.ORG.

The HDF hosted a recent research update webinar which was really fun - recent updates from our lab's collaboration with Paul Valdmanis, Tamara Maiuri and Rachel Harding. You can watch here: youtube.com/watch?v=ubnsuB…

We sat down to discuss genetic modifiers to learn more about how they could impact the progression of #Huntingtonsdisease . This premieres Wednesday, March 27 and will have subtitles in multiple languages. Mark your calendar! Nayana Lahiri Centre for Neuropsychiatric Genetics and Genomics EHDN Collaborations EHDN News

#HDgratitudeday TODAY - please share
Important change in details:
The live-streaming event with families of Venezuela & special guests will now be hosted on Google Meet (limited seats)

13:00 GMT / 14:00 CET / 9:00* AM EST
Join HERE: meet.google.com/sec-znat-ofo
Code: sec-znat-ofo

#HDgratitudeday 23 March 2024.
Live streaming event: youtube.com/watch?v=TT6zUQ…

#HDGratitudeDay is on Saturday, March 23rd. 'Gratitude Day marks the partnership - past, present and into the future - of families worldwide living with #huntingtonsdisease and scientists working together in our great quest for a cure. - Jimmy Pollard​
tobtr.com/s/12324515

1. #MedTwitter #NeuroTwitter #Huntingtonsdisease

Some of the most incredible advances in genetic science have come from this community, let's say thanks

Put your hands together with a H and a ❤️, take a pic & tweet using #HDgratitudeday

factor-h.org/gratitude-day-…

JOIN-HD is a global registry to understand experiences of people impacted by #Juvenile #huntingtonsdisease . We launched a partnership with Matrix for our new platform. Full press release here: bit.ly/joinhdupdate EHDN Collaborations Help4HD HuntingtonStudyGroup HDBuzz House of Byrne lab

On 23 March - HD Gratitude Day - join the live streaming event with the people from Venezuela #hdgratitudeday
youtube.com/watch?v=TT6zUQ…

Are you ready for Gratitude Day 2024?
factor-h.org/gratitude-day-… Share your images with #hdgratitudeday - we are excited to see them!

A recent letter from NHS England to Integrated Care Boards around the country highlighted difficulties that some people with conditions like Huntington's disease in accessing mental health support. Services must be inclusive and based on need, not diagnosis.