Throughout #ECRD2024 , we delved into 6 key policy areas, creating a robust framework for the future, and culminated in a co-created open letter to the future EU institutions.

Be part of this significant moment! Read and sign now: form.jotform.com/241204310934343

What a fantastic conclusion to ECRD 2024! A huge thank you to our speakers, over 700 participants, and everyone who followed us on social media. 🌟

What else is there to say?

Actually, a lot! 👇
eurordis.org/conclusive-cal…

A Masterclass in Male Urinary Incontinence Surgery will be held on 4 June 2024 by ERN eUROGEN's healthcare provider full member, Fondazione Policlinico Universitario Agostino Gemelli IRCCS, Rome (IT).
For more information, please email: [email protected]

Join a ERN eUROGEN & ERNICA webinar supported by EUROPEAN PAEDIATRIC SURGEONS’ ASSOCIATION & ARM-Net:
🖥 Hirschsprung’s Disease & Inflammatory Bowel Disease
👥 Alessio Pini Prato & Tomas Wester
📅 Wed 22 May, 18:00 CEST
🔗 bit.ly/ERNeUROGEN22Ma…
#RareDisease #UroSoMe #Urology #PedUro #SoMe4PedSurg

Join a ERN eUROGEN & ERNICA webinar supported by EUROPEAN PAEDIATRIC SURGEONS’ ASSOCIATION & ARM-Net:
🖥 Hirschsprung’s Disease & Inflammatory Bowel Disease
👥 Alessio Pini Prato & Tomas Wester
📅 Wed 22 May, 18:00 CEST
🔗 bit.ly/ERNeUROGEN22Ma…
#RareDisease #UroSoMe #Urology #PedUro #SoMe4PedSurg

📣ERN ReCONNET 🇪🇺 EVENT is scheduled for May 30th, 3-5 pm CEST!
🎯Good Practice Sharing Initiative led by Dr Rosaria (Sara) Talarico n ePAG 🇪🇺 Ilaria Galetti 🇸🇩
🗒️Details bit.ly/3QJW1rH
✍️Registration bit.ly/3JZL7u4
ℹ️ on Research n Quality of Care WG bit.ly/3UGCFVh

Join a ERN eUROGEN & ERNICA webinar supported by EUROPEAN PAEDIATRIC SURGEONS’ ASSOCIATION & ARM-Net:
🖥 Hirschsprung’s Disease & Inflammatory Bowel Disease
👥 Alessio Pini Prato & Tomas Wester
📅 Wed 22 May, 18:00 CEST
🔗 bit.ly/ERNeUROGEN22Ma…
#RareDisease #UroSoMe #Urology #PedUro #SoMe4PedSurg

Join a ERN eUROGEN & ERNICA webinar supported by EUROPEAN PAEDIATRIC SURGEONS’ ASSOCIATION & ARM-Net:
🖥 Hirschsprung’s Disease & Inflammatory Bowel Disease
👥 Alessio Pini Prato & Tomas Wester
📅 Wed 22 May, 18:00 CEST
🔗 bit.ly/ERNeUROGEN22Ma…
#RareDisease #UroSoMe #Urology #PedUro #SoMe4PedSurg

🌈On #IDAHOTB , ERN eUROGEN reaffirms its commitment to inclusivity and support for all individuals regardless of sexual orientation/gender identity, as emphasised through the network's Expertise Area 2.7 Surgery for transgender patients: eurogen-ern.eu/workstreams-an…💖🏳️‍🌈 #FPMRS

🎉 Happy #InternationalNursesDay ! 🎉Today, ERN eUROGEN honours the incredible contributions of #urology nurses: your dedication & expertise make a profound difference. Thank you for your unwavering commitment & tireless efforts! 💙
#RareDisease #UroSoMe #SoMe4PedSurg

🎉 Happy Europe Day! 🇪🇺 ERN eUROGEN joins the EU to celebrate unity, diversity, & progress across the continent. We're proud to be breaking down barriers, sharing expertise, & providing support across the EU.
#EuropeDay #UroSoMe #Urology #PedUro #SoMe4PedSurg #FPMRS #UroOnc 🌟

🎉 A new version of the ERN eUROGEN Patient Journey for #AnorectalMalformation is published. 📍
Read more: eurogen-ern.eu/ern-eurogen-pa…
🙏 Many thanks to our ePAG reps & EURORDIS-Rare Diseases Europe for their support in producing this!
#RareDisease #UroSoMe #Urology #PedUro #SoMe4PedSurg

🥳 The ERN eUROGEN YouTube channel has hit 1K subscribers! 🍾 You, too, can unlock a treasure trove of knowledge and inspiration by subscribing today.
📺 SUBSCRIBE NOW: youtube.com/@ERNeUROGEN

#RareDisease #UroSoMe #Urology #PedUro #SoMe4PedSurg #FPMRS #UroOnc

🚨 Radboudumc is searching for a new Professor of Paediatric Urology. Interested in this challenging and inspiring position? 📷 Read more and apply via the link: radboudumc.nl/vacatures/1426…

🚀 The third EJP RD MOOC on 'Health Data Ethics & Regulatory Frameworks in Rare Disease Research' has launched!
Join an enriching learning experience with expert educators on hand to address your queries.
🔗 futurelearn.com/courses/health…

TONIGHT! Join a ERN eUROGEN & ERNICA webinar supported by EUROPEAN PAEDIATRIC SURGEONS’ ASSOCIATION & ARM-Net:
🖥 ARM & Sexuality
👥 Stefano Eleuteri Sapienza Università di Roma & Marieke Witvliet Utrecht University
📅 Wed 24 April, 18:00 CET
🔗 bit.ly/ERNeUROGEN24Ap…
#RareDisease #UroSoMe #Urology #PedUro #SoMe4PedSurg

📚📘 It's #WorldBookDay ! 📘📚 So why not buy a copy of ERN eUROGEN's book Rare and Complex Urology, published by Elsevier?
sciencedirect.com/book/978032399… ⭐️
#RareDisease #UroSoMe #Urology #PedUro #SoMe4PedSurg #FPMRS #UroOnc

Join this ERN eUROGEN & ERNICA webinar supported by EUROPEAN PAEDIATRIC SURGEONS’ ASSOCIATION & ARM-Net:
🖥 ARM & Sexuality
👥 Stefano Eleuteri Sapienza Università di Roma & Marieke Witvliet Utrecht University
📅 Wednesday 24 April, 18:00 CET
🔗 bit.ly/ERNeUROGEN24Ap…
#RareDisease #UroSoMe #Urology #PedUro #SoMe4PedSurg

Watch the EJP RD - European Joint Programme on Rare Diseases new interview featuring Johan De Graaf, a Patient Expert. Johan highlights the important role of patients in research, emphasizing significant changes in the past years.
▶️ Watch the full video here: youtube.com/watch?v=sADAC3…

Exciting update for #raredisease enthusiasts! 🌟Registration for the Final #EJPRD Conference has been extended to 22 May 2024! Join online 27-28 May 2024 for engaging sessions on RD research. Check out the agenda and secure your spot today! ℹ️ ejprarediseases.org/ejp-rd-final-c…