EFNA is delighted to welcome our newest Board Member- Arabela Acalinei. Arabela is President of the European Alliance of Neuromuscular Disorders Associations (EAMDA), whom she will represent on the board.
We look forward to working with you Arabela!

Meet Mary Troup - member of EFNA's new Community Advisory Board - a group comprised of 12 dedicated patient advocates who will receive specialised training in advocating for both #neurology and their specific disease areas.
Read more: efna.net/about-us/cab/

EFNA's EU Election Toolkit has all the assets you'll need to engage with MEP candidates ahead of the elections!
efna.net/eu-elections-t…
#EUelections #EUhealth

🇪🇺 The #EUelections2024 will be a crucial opportunity for the brain community to shape the future of European brain health, research, and innovation.

Don't forget to #UseYourVote on June 6-9 to make sure the voice of our community is heard.

Learn more: braincouncil.eu/event/2024-eur…

Today, on #WorldParkinsonsDay , we're launching the #SummerOfSport ❤️

We'll tell the incredible stories of European #Parkinson 's sporting communities, & help people with #Parkinson s find the right sport for them.

👉 buff.ly/43PNk4t

#Parkinson sAwarenessMonth #Paris2024

Meet Chantel Fouche, member of EFNA's new Community Advisory Board. Chantel advocates passionately to raise awareness about #ADHD , particularly undiagnosed ADHD in women.
Read more: efna.net/about-us/cab/
#ADHD women #WomensHealth @adhdwomen2020 @ADHDEurope

Meet Nancy Van Hoylandt Van Hoylandt Nancy, member of EFNA's Community Advisory Board (CAB). Nancy is an experienced #patientadvocate dedicated to raising awareness and understanding of #MECFS .
Read more about the CAB here: efna.net/about-us/cab/
#myalgicencephalomyelitis #neurology

EFNA’s latest e-learning module explores the EU Health Data Space (EHDS)- what it can be used for, what protections are in place for EU #health data, and how it can be used to support policy implementation:
efna.net/courses/ehds-f…

WHO/Europe Foresight in Rare Disease Policy EURORDIS-Rare Diseases Europe
#IGAP #Rare2030

NAI are delighted to have become new members of EFNA The European Federation of Neurological Associations [EFNA] mission is to make neurological patient rights and needs heard at the highest level. Go to efna.net for more about them and their work.

Meet Gracemarie Bricalli, an ME/CFS advocate and a member of EFNA's new Community Advisory Board. Meet all of EFNA’s Community Advisory Board members and learn more about the program at: efna.net/about-us/cab/
#MECFS #millionsmissing #chronicillness #advocacy
European ME Alliance

Meet Lorraine Duffy, member of EFNA's Community Advisory Board, who will participate in a series of workshops elevating and applying patient expertise & placing patients on an equal footing among #neurology stakeholders: efna.net/about-us/cab/
#TBI #BrainInjury #advocacy

Meet Lorraine Duffy, member of EFNA's Community Advisory Board, who will participate in a series of workshops elevating and applying patient expertise & placing patients on an equal footing among #neurology stakeholders: efna.net/about-us/cab/
#TBI #BrainInjury #advocacy

The European ME Alliance (European ME Alliance) has released a survey report that underscores the urgent need for recognition of #ME CFS as a serious physical illness. Early diagnosis & disease management are critical: europeanmealliance.org/emea-pan-europ…

#MyalgicEncephalomyelitis #ME

The official website of the Coordination & Support Action BrainHealth is now live!

Discover official updates and information about the way our 21 partners are paving the way towards an European Partnership on Brain Health.

🔗 brainhealth-partnership.eu

Meet @LeilaAliMD - member of EFNA's new Community Advisory Board- a group comprised of 12 dedicated patient advocates who will receive specialised training in advocating for #neurology at both EU and regional levels. Read more: efna.net/about-us/cab/

𝙀𝙈𝙀𝘼 𝘾𝙤𝙢𝙢𝙚𝙣𝙩:
On #WorldHealthDay
'The survey strongly refutes the Biopsychosocial (BPS) model, labelling it as a failed and harmful approach to #MECFS '

europeanmealliance.org/emea-pan-europ…
#HealthForAll #MyHealthMyRight #GlobalHealth EU Health - #HealthUnion