ILFA Ireland was delighted to receive this positive feedback from a first time attendee at our online exercise class for lung fibrosis patients. Exercise really is the best medicine! To register to join the classes, please email [email protected] or call 086 871 5264

European Immunisation Week. Lung fibrosis patients are extremely medically vulnerable and at greater risk from infections. Ask your doctor or clinical nurse specialist if you should get vaccinaed against Influenza, Covid-19, Pneumonia and other infections
hse.ie/eng/health/imm…

Most viewed in the last 7 days from JAMA:

Review summarizes current evidence regarding the diagnosis and treatment of interstitial lung disease.

ja.ma/4d9x7eF

Thank you to all the ILFA Ireland delegates attending the EU-PFF Summit. We look forward to hearing all about your learning experiences at this excellent meeting. Safe travels home!

Huge congratulations Carita bramhill 👏
Thank you for your dedication and commitment to highlighting the unmet needs of lung ifbrosis patients.

The recording of ILFA's Patient Information Day held online on 13th April is now available to view via ILFA's YouTube Channel.
youtu.be/KABgD3DEUuQ?si…

Fantastic news! Well done Carita bramhill from ILFA Ireland and our PPI Research Advisory Group 👏

Wonderful representation from ILFA Ireland EU-PFF #PFSUMMIT Thank you to Liam Galvin for phenomenal work that made this happen & welcome to Maureen O'Donnell new CEO ILFA Ireland

Wonderful to be with friends and patient partners #PFSUMMIT24 Thx to Matt ILFA Ireland and John EU-PFF for sharing lived experiences & your unfailing altruism in driving change ERS Assembly 12 - ILD

On 24th April ILFA Ireland attended the Oireachtas Joint Committee on Health. It was a privilege to attend and to respectfully expose the reality of the unmet healthcare needs of lung fibrosis patients. Thanks to everyone who took part. Lung fibrosis patients deserve better.

Transcript of 'Health Services for Persons with Lung Fibrosis' - Discussion with members of the Joint Committee on Health and ILFA Ireland
oireachtas.ie/en/debates/deb…

#TeamILFA EU-PFF Patient Summit. Pictured are Maureen O'Donnell (@ILFA_Ireland CEO), Matt Cullen, Robert Hurley, Sean O'Se, Liam Galvin (EUPFF CEO) and Colin Edwards Earlier today Matt delivered a platform presentation about his experience of lung fibrosis. Well done Matt!

1st session of #pfsummit24 starts with a look at supportive care - opening with Matt Cullen from ILFA Ireland, a patient & advocate sharing his experience & wise words

Wishing you the best of luck Carita bramhill Thanks for all your research on the unmet needs of lung fibrosis patients

ILFA Ireland Very much looking forward to attending attending this conference and sharing my research on the unmet needs of patients living with IPF and the important role of PPI. EU-PFF

Sincere thanks to Age & Opportunity 🌈 Sport Ireland for awarding a grant to ILFA Ireland under the Age & Opportunity Active National Grant Scheme for Sport and Physical Activity for Older People. We are delighted with this very welcome news 🙏

Was speaking in the Oireachtas yesterday with the Joint Committee on Health, demanding better care for patients with Lung Fibrosis ILFA Ireland

Powerful testimony from representatives of ILFA Ireland, healthcare professionals & a patient with lung fibrosis today at Houses of the Oireachtas - Tithe an Oireachtais Health Committee about the need for a Clinical Care Programme, streamlined oxygen provision, access to pulmonary rehab, & financial supports.

Great work by Senior transplant physiotherapist Olive McCafferty & ILFA Ireland advocating for patients with lung fibrosis at the Oireachtas joint committee on health today 👏👏

Patients with lung fibrosis deserve the best care and support. Along with patient Robert Hurley, Michael Darragh Macauley, and ILFA we spoke at the Joint Committee on Health today. ILFA Ireland⁩ ⁦Michael D Macauley 🍉⁩ ⁦irishthoracicsociety⁩ ⁦RCSI⁩ ⁦⁦EU-PFF⁩