We have loved meeting all of our participants over the last couple of days, & look forward to welcoming you on our final day. Make sure not to miss out on our final panel sessions tomorrow focused on EB management, connecting the MENA region with rare disease initiatives + more

Already today, we have several fantastic presentations on new topical therapeutic options, research updates and gene therapy information. And there's still more to come! 👏👇

Day 3 of the #EBCongress2024 has kicked off with panel sessions from experts around the world who are discussing key issues in access and advocacy for rare disease patients.

Welcome to day 2 of #EBCongress2024 ! Today focuses on advocacy in EB with networking sessions, achievements and challenges of DEBRAs in the MENA region and worldwide, and the priorities of patients.

Opened with an informative introduction from DEBRA International president Ritu Jain.

We’re here! The #EBCongress2024 is underway with emotional opening remarks from Yasmin ElSamra Foundation, DEBRA International and representatives from the National Research Centre and universities around Egypt 🇪🇬

Join the DIYC Patient Seminar online! 🧑🏽‍💻 Sign up below👇️

We encourage you to please share this link with your communities and anyone who you think would like to attend.

Time (Online): Part 1: 0900 - 1030 (GMT +2); Part 2: 1100 - 1230 (GMT +2)

docs.google.com/forms/d/e/1FAI…

Today we're celebrating #WorldHealthDay2024 , with the theme 'my health, my right’ chosen to champion the right of everyone, everywhere to have access to quality health services, education, and info 🌍️

Get in touch to find your DEBRA support group to help on your #EB journey.

Thank you Urgo Medical UK & Ireland for your support, and for allowing us to come together and learn more about EB. We look forward to welcoming you in Cairo soon!

Raise global awareness about the significant impact of skin conditions, and to urge health policy leaders worldwide to prioritize these critical issues. Join the Movement: It's About Our Skin, But It's Also About Our Lives 🌟📢 #NotJustMySkin

👉️ notjustmyskin.org

👏👏👏 Thank you Krystal Biotech, we are very much looking forward to having you at the next EB Congress 2024 in Cairo!

Illumina ▶️Alexandra Heumber, CEO of Rare Diseases International who has a deep-rooted conviction in patient advocacy, multilateralism and diplomacy to improve global health 🌎👏

Plus many, many more! Take a look at our programme online for more details ebcongress2024.org/programme

Welcoming...
▶️Shirlene Badger, medical sociologist and Global Lead for Patient Advocacy at Illumina with a passion for the value of genomics as information by which we can make decisions about our health 🧬👏