1/ We had a wonderful #HKS2024 meeting in partnership with JExpMed and the @RockefellerUnivFriday Lecture Series on 'The #thymus : from biology to medicine and back', chaired by Mark Anderson.

With the campaign theme being “Access to care for all PID patients, everywhere,” we want to show how widespread the celebrations for #WorldPIWeek are.

❓How many countries do you think World PI Week was celebrated in last year? 🌎

📢Only 3⃣0⃣ minutes left until Chapter 1 of our comic book 'An Intergalactic Adventure with Immuno-Y' drops!

📢The wait is almost over!

Chapter 1 of our first digital comic book for #WorldPIWeek drops in just 2 hours! 🎉

Dive into an epic adventure celebrating the power of unity and resilience in the face of adversity.

Stay tuned for the unveiling! 💥📚 #PrimaryImmunodeficiency

Chapter 1 of #WorldPIWeek comic book unveiled 🎉

Join Immuno-Y as he encounters Alex, a young boy with #PrimaryImmunodeficiency . 💪

For more: bit.ly/3PWLOrg

Let's make this April the WorldPImonth raising awareness of inborn errors of immunity! They are there... you just have to look for them.

Corticosteroids impair epithelial regeneration in immune-mediated intestinal damage: buff.ly/3VPGJoJ

Alan Hanash Memorial Sloan Kettering Cancer Center
#Immunology #Transplantation

New paper from TangyeLab Casanova Lab Cindy Ma in JExpMed. check it out! 👇

Thank you, JAMA Network Open for selecting the DADA2 Consensus Statement paper as a CME-credit eligible paper for one credit. This is an important way to continue to share awareness of DADA2 among doctors. jamanetwork.com/journals/jaman…

Do not hesitate - this is the place to be :)

Nous ouvrons un poste d'assistant specialiste partagé de Médecine Interne entre les services de Médecine Interne des hôpitaux de Tenon (Paris 20ème) et de Poissy.
Disponible le 1/11/2024 pour 2 ans.
Informations:
[email protected]

Leire Solis, IPOPI health policy and advocacy senior manager, frames the discussion on PIDs and the challenges of living with chronic, rare diseases, stressing holistic patient care. Watch for her insights guiding today's talks on challenges and EU solutions. 🌟🔍 #PatientCare

Nature research paper: Role of IL-27 in Epstein–Barr virus infection revealed by IL-27RA deficiency go.nature.com/3J5ODml

Patricia Luck, INGID Vice-President, shares her pivotal role in accompanying #PID patients in daily consultations and families of babies navigating #SCID diagnosis and treatment thanks to #NewbornScreening .

#PID Forum

Now, Prof Isabelle Meyts from UZ Leuven sheds light on the significance of ERNs, stressing the need for accessible and affordable treatment for PID patients. She emphasises the importance of directing resources towards research on low-prevalence diseases like PIDs.

As #PID Forum concludes, our European Parliament host, Radka Maxová, reaffirms support for the #primaryimmunodeficiency community.

We are grateful for your help and eager to continue our work for the well-being of #PID patients and their families!

Big thanks to the patient advocates, experts, and policymakers for making #PIDForum impactful!

Highlighting remaining challenges and paths forward in #EU diagnosis, treatment, and care for patients.

Stay tuned for the recommendations and the report.

Neonatal screening is a game changer when it comes to accessing timely diagnosis and appropriate treatment for those with serious and sometimes life-threatening disorders.

This is why we celebrate #INSD

For those living with a rare disease, finding a diagnosis can often be difficult.

Neonatal screening for rare diseases can help to speed up this process for patients.

Visit our website to learn more👇

bit.ly/4bqsHPB

#NeonatalScreeningMatters
#SeeTheUnseen

1/ 📢 Registration for the 2024 Henry Kunkel Society Meeting is now OPEN! 🌟 Join us for this exciting meeting on 'The thymus: from biology to medicine and back .' Don't miss out! Register today at henrykunkelsociety.org/registration 🎟️ #HKS2024 #Immunology 🧬🔬