The ME Association is sad to learn that Dame Shirley Conran had passed away and we send our condolences to her family.
'Dame Shirley began writing books after she was diagnosed with ME in her late 30s and could no longer work full-time...'
meassociation.org.uk/zxm1

The Times: 'People with ME have been ignored for far too long'
Sajid Javid explains why it is important to raise awareness and focus on the care and treatment of #pwME and #LongCovid this #WorldMEDay
meassociation.org.uk/ause
NICE #MECFS

US clinical trials to launch for long term #Covid19 symptoms including sleep disturbances, exercise intolerance and post-exertional malaise (PEM) in people with #LongCovid
meassociation.org.uk/gvqc

If paradise could be twice as nice, you’ll be wishing you could be in #Gloucestershire over the next few days | ME Association website| 9 May 2024:
meassociation.org.uk/2024/05/a-quiz…
#mecfs #MyalgicEncephalomyelitis #friendship .ME Association

.ME Association
If paradise could be twice as nice, you’ll be wishing you could be in #Gloucestershire over the next few days | ME Association website| 9 May 2024:
meassociation.org.uk/2024/05/a-quiz…
#mecfs #MyalgicEncephalomyelitis #friendship

meassociation.org.uk/i25q

A short-form summary on anaesthetics and ME/CFS
The ME Association and the Royal College of Anaesthetists have now produced a short-form summary of the information leaflet on anaesthetics and ME/CFS. Download by visiting the RCoA website:
meassociation.org.uk/229f

Employer give Tess time off to paint for the ME Association! | ME Association blog | 8 May 2024:
meassociation.org.uk/2024/05/employ…
#animals #rabbits #mecfs #MyalgicEncephalomyelitis

.ME Association
Employer give Tess time off to paint for the ME Association! | ME Association blog | 8 May 2024:
meassociation.org.uk/2024/05/employ…
#animals #rabbits #mecfs #MyalgicEncephalomyelitis

Research: Working together to find answers to ME/CFS!
Summer will see a series of ME/CFS workshops for #pwME health professionals and researchers to join together and share knowledge and experiences.
Full information here: meassociation.org.uk/e0d5
#MECFS

Parliamentary question: Hospital compliance with NICE Guideline on ME/CFS
“To ask His Majesty's Government what assessment they have made of hospital compliance with NICE guidelines for the treatment of inpatients with severe myalgic encephalomyelitis.”
meassociation.org.uk/a2xc

BBC NEWS: Infected-blood victim 'angry' at lost records
meassociation.org.uk/y3ck
#MECFS #MyalgicEncephalomyelitis #hepatitis #bloodtransfusion

ABC News: Griffith University researchers to trial naltrexone on long COVID patients
meassociation.org.uk/d7j4
#MECFS #MyalgicE #LongCovid

Please help us win £1,000 in the next draw, which closes on 20th May.
Key in our charity number 801279.
Pick Health charity in drop-down menu.
Takes a minute, that's all!
Nominate here: movementforgood.com/#nominateAChar…
Thank you.

.ME Association
Please help us win £1,000 in the next draw, which closes on 20th May.
Key in our charity number 801279.
Pick Health charity in drop-down menu.
Takes a minute, that's all!
Nominate here: movementforgood.com/#nominateAChar…
Thank you.

.ME Association
.Physios For ME
Available from the ME Association's bookshop, price £24:
meassociation.org.uk/product/a-phys…
#mecfs #MyalgicEncephalomyelitis #physiotherapy

A member of our ME/CFS community asks:

'I am trying to find reviews from people who have had firsthand experience of a recent admission to the NICPM.
Do you have any information that would help my daughter make a decision regarding a referral ?'
#SevereME #VerySevereME