MPN Research Foundation
@MPN_RF
We’re a global research foundation stimulating research in pursuit of new treatments, & eventually a cure, for PV, ET, & MF. #mpnsm
ID:198557406
https://www.mpnresearchfoundation.org/ 04-10-2010 16:44:03
2,1K Tweets
2,6K Followers
512 Following
Follow People
Research shows a heightened risk of NMSC in MPN patients, especially those on ruxolitinib. Regular skin checks are essential. Your donations this May support vital MPN research & are matched! #MPNAwareness #SkinCancerAwareness mpnrf.info/24mmx
In 24 years, we've gone from barely recognizing MPNs to ET, PV, and MF being at the forefront of cancer research conversation. The journey isn’t over—your support fuels the next breakthroughs. Donate now to propel #MPNresearch : mpnrf.info/24mmx
'Bob emphasized research should impact patient care,' says Dr. Andrew Schafer. Our 2024 MPN Challenge™ integrates this vision. #MPNChallenge Awardees announcement soon! Join us and let's advance towards a cure together! mpnrf.info/3UF1aDG
Your research can be guided by real patient experiences, shaping future treatments. Join us in merging patient insights with scientific progress. Let's innovate together. Subscribe for updates: mpnrf.info/3P2JAX2 #MPNResearch #InnovationThroughCollaboration
Thank you @LLS and @NaveenPemmaraju for shining the light on latest #treatmentadvances for #Myelofibrosis . You can listen to the podcast here: thebloodline.org/TBL/165e165/ #podcast #mpnresources
2019 saw us facilitate a #PFDDmeeting , integrating MPN patient insights into drug development, in partnership with #FDA , #lifesciences , and research experts. Dive into the outcomes and collaborate with us for innovative #MPN treatments moving forward. mpnrf.info/3P2JAX2
A new #study on the deeper understanding of #JAK2 mutations & MPN development highlights the power of cross-institutional #collaboration . Together, we're bridging gaps in #research for transformative solutions. Abstract: pubmed.ncbi.nlm.nih.gov/38233595/ Jyoti Nangalia Claire Harrison
Recent eJHaem study by @StephenOh & team challenges #myelofibrosis treatment evaluation, showing #momelotinib & #ruxolitinib improve #fibrosisgrades but not tangible benefit to survival/well-being. Time to expand response metrics? Details: onlinelibrary.wiley.com/doi/10.1002/jh…
Our 2024 MPN Challenge™ awards are guided not only by the research itself, but by patient & caregiver insights, ensuring projects reflect real needs. Join us in funding impactful research informed by real stories. #MPNResearch #PatientInsights mpnrf.info/3P2JAX2
March UtM is out! Read about UK study on skin cancer risks for MPN patients. Who develops which MPN and why? Join our community for more features and resources. mpnrf.info/3P2JAX2 Jyoti Nangalia #theunseenjourney #progressforpatiens .org
#Patientinvolvement in R&D isn't just beneficial; it's essential. By integrating #patientinsights , we ensure our efforts meet real #MPN needs, leading to more meaningful treatments & faster availability. Let's innovate together. mpnrf.info/3P2JAX2
MPN progression puzzles #patients , #clinicians , & industry alike. Our solution? Creating our #MPN Progression Research Network (PRN) Summit, fostering global collab and #cross -institutional #datasharing . Join our community now: mpnrf.info/3P2JAX2