Myeloma Patients Europe(@MyelomaEurope) 's Twitter Profileg
Myeloma Patients Europe

@MyelomaEurope

A network of highly efficient, effective and sustainable myeloma and AL amyloidosis patient organisations across Europe

ID:1277121884

linkhttp://www.mpeurope.org calendar_today18-03-2013 08:00:01

4,7K Tweets

1,8K Followers

994 Following

Myeloma Patients Europe(@MyelomaEurope) 's Twitter Profile Photo

Have you heard about MPE’s European Group?

It is a platform tailored for patients under 55 to connect, share experiences and swap resources. Plus, we host quarterly webinars led by experts!

Want to learn more? Click here: mpeurope.org/european-young…

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MPE´s research assistant Silene ten Seldam and Hans Scheurer presented at the fourth IMI_SISAQOL -IMI consensus meeting on the patient perspectives on PRO's and the patient community's future use of the IMI_SISAQOL -IMI recommendations.

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Myeloma Patients Europe(@MyelomaEurope) 's Twitter Profile Photo

📢Join us today for the webinar discussing the 'New EU HTA Regulation and Implications for Patients' presented by MPE and Acute Leukemia Advocates Network (ALAN)

Gain insights from Béla Dajka, Policy Officer at the European Commission.

Secure your spot now: mpeurope-org.zoom.us/webinar/regist…

📢Join us today for the webinar discussing the 'New EU HTA Regulation and Implications for Patients' presented by MPE and @AcuteLeuk Gain insights from Béla Dajka, Policy Officer at the European Commission. Secure your spot now: mpeurope-org.zoom.us/webinar/regist… #EUHTA #PatientAdvocacy
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Myeloma Patients Europe(@MyelomaEurope) 's Twitter Profile Photo

MPE, representing WECAN, is providing the patient perspective and voting on the latest, IMI_SISAQOL -IMI recommendation statements at the fourth consensus meeting in Hamburg, Germany.

MPE, representing @WECANadvocate, is providing the patient perspective and voting on the latest, @sisaqol -IMI recommendation statements at the fourth consensus meeting in Hamburg, Germany.
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MijelomCRO Croatian Multiple Myeloma Support Assoc(@MijelomCRO) 's Twitter Profile Photo

Join us today at the online event with Mira Armour of the launch of the Economist Impact report and discussion on the state of MM care in the region. Thank you Johnson&Johnson on sponsoring this report. International Myeloma Foundation Myeloma Patients Europe

Join us today at the online event with @ArmourMira of the launch of the Economist Impact report and discussion on the state of MM care in the region. Thank you Johnson&Johnson on sponsoring this report. @IMFmyeloma @MyelomaEurope #equitable #myeloma
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📢Join our webinar focusing on disease and treatment specifics for young myeloma patients.

🗓️Date: 29 May, 2024
🕓Time: 16:00 – 17:00 CET.

Prof. Dr. Michel Delforge will share insights during his 40-min presentation and a 20-min Q&A session.

mpeurope-org.zoom.us/webinar/regist…

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The video and photo gallery of the 2024 is on our website!

Click on the link and check out the video interviews and photos of all the sessions and panel discussions during the MPE Masterclass weekend in Madrid, Spain.

mpeurope.org/what-we-do/pro…

The video and photo gallery of the #MPEMasterclass 2024 is on our website! Click on the link and check out the video interviews and photos of all the sessions and panel discussions during the MPE Masterclass weekend in Madrid, Spain. mpeurope.org/what-we-do/pro…
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Myeloma Patients Europe(@MyelomaEurope) 's Twitter Profile Photo

Sign up and participate in MPE activities!

Whether you want to advocate, share experiences, or learn more, our community has a place for you.

📝Together, we can make a difference.

Sign up now:mpeurope.org/get-involved-i…

Sign up and participate in MPE activities! Whether you want to advocate, share experiences, or learn more, our community has a place for you. 📝Together, we can make a difference. Sign up now:mpeurope.org/get-involved-i…
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Myeloma Patients Europe(@MyelomaEurope) 's Twitter Profile Photo

📢 Join us for a webinar discussing the 'New EU HTA Regulations and Implications for Patients' presented by MPE and Acute Leukemia Advocates Network (ALAN) on May 22nd at 15:00 CEST.

Gain insights from Béla Dajka, Policy Officer at the European Commission.

Secure your spot now:mpeurope-org.zoom.us/webinar/regist…

📢 Join us for a webinar discussing the 'New EU HTA Regulations and Implications for Patients' presented by MPE and @AcuteLeuk on May 22nd at 15:00 CEST. Gain insights from Béla Dajka, Policy Officer at the European Commission. Secure your spot now:mpeurope-org.zoom.us/webinar/regist…
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Myeloma Patients Europe(@MyelomaEurope) 's Twitter Profile Photo

Through the Navigator, and patients can search for clinical trials in Europe. You can find trials aligned with your requirements, whether it is a certain hospital or a specific disease stage.

Discover the MPE Navigator: navigator.mpeurope.org/en

Through the Navigator, #myeloma and #ALamyloidosis patients can search for clinical trials in Europe. You can find trials aligned with your requirements, whether it is a certain hospital or a specific disease stage. Discover the MPE Navigator: navigator.mpeurope.org/en
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Myeloma Patients Europe(@MyelomaEurope) 's Twitter Profile Photo

📢 Do not miss our webinar on 'New EU HTA Regulations and Implications for Patients' by MPE and
Acute Leukemia Advocates Network (ALAN) on 22 May at 15:00 CEST.

Learn from Béla Dajka, Policy Officer at the European Commission.
Register now here: mpeurope-org.zoom.us/webinar/regist…

📢 Do not miss our webinar on 'New EU HTA Regulations and Implications for Patients' by MPE and @AcuteLeuk on 22 May at 15:00 CEST. Learn from Béla Dajka, Policy Officer at the European Commission. Register now here: mpeurope-org.zoom.us/webinar/regist…
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European Patients' Forum(@eupatientsforum) 's Twitter Profile Photo

📅 From 4 to 5 May, Claudia Louati, Head of Policy at EPF and Valentina Strammiello, Director of Programmes at EPF attended the MPE Masterclass 2024, organised by Myeloma Patients Europe.

During their interventions, they discussed and access to healthcare in the EU!

📅 From 4 to 5 May, Claudia Louati, Head of Policy at EPF and Valentina Strammiello, Director of Programmes at EPF attended the MPE Masterclass 2024, organised by @MyelomaEurope. During their interventions, they discussed #HTA and access to healthcare in the EU!
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Orla McCourt(@Orla_McCourt) 's Twitter Profile Photo

Delighted to be part of this important session Myeloma Patients Europe masterclass in Madrid!

Access to supportive care, including , psychological support, nutrition and specialist nursing care, increasingly crucial to living well with myeloma

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As the comes to an end, MPE´s Head of Medical Education and Scientific Engagement, Solène Clavreul, is speaking about the MPE Clinical Trial Navigator.

You can learn more about the here: navigator.mpeurope.org/en

As the #MPEMasterclass comes to an end, MPE´s Head of Medical Education and Scientific Engagement, Solène Clavreul, is speaking about the MPE Clinical Trial Navigator. You can learn more about the #MPENavigator here: navigator.mpeurope.org/en
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Myeloma Patients Europe(@MyelomaEurope) 's Twitter Profile Photo

Diane Loening-Martens wrapping up our last session of the : “Access to supportive care in cancer is our right. And we need to demand that and fight for it.”

Diane Loening-Martens wrapping up our last session of the #MPEMasterclass: “Access to supportive care in cancer is our right. And we need to demand that and fight for it.” #myeloma #PatientAdvocacy
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Myeloma Patients Europe(@MyelomaEurope) 's Twitter Profile Photo

The panel discussion on supportive care for and patients is going on right now.

Experts Surabhi Chaturvedi, Dr. Orla McCourt, Dr. Mirjana Rajer and Christine Skeet are sharing insights and best practices.

The #MPEMasterclass panel discussion on supportive care for #myeloma and #ALamyloidosis patients is going on right now. Experts Surabhi Chaturvedi, Dr. Orla McCourt, Dr. Mirjana Rajer and Christine Skeet are sharing insights and best practices. #SupportiveCare
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