The Saguenay region of Quebec has the highest prevalence of #MyotonicDystrophy in the world (1 in 400). Several new #clinicaltrials on #DM1 at the CRU are testing #ASO -based therapies that, if successful, would offer the first disease modifying treatment. cru.mcgill.ca/nm

Even #research takes a short break for a once-in-a-lifetime #eclipse ! Physicians, clinicians, researchers, clinical research coordinators and even patients headed outside to (safely) view the astronomical event.
The Neuro McGill University McGill Office for Science and Society McGill Physics

La Journée Lavande 26 Mars est la journée mondiale de sensibilisation à l'épilepsie. L’épilepsie est un trouble neurologique caractérisé par un changement soudain et bref du cerveau qui se manifeste sous forme de crise. En savoir plus buff.ly/4avrMMt

Health Canada has approved #ETNA eye-tracking software to assess #MS . An ongoing observational study at the CRU is testing if it could accurately predict #EDSS score. If successful, more sensitive, real-time biomarkers would be available to clinicians. cru.mcgill.ca/ms.

Grande nouvelle! Fiers d'annoncer que l'URC a lancé son tout premier essai de #thérapiegénique pour une maladie neurologique. Cette étude de #phase1 sur la #DFT avec mutation #GRN teste une thérapie par vecteur viral à dose unique. 1er patient dépisté cette semaine! The Neuro

Gave a talk this morning at the Royal London hospital about neurogenomics and Precision Medicine in neurodegeneration. On my way back, we went by the old Royal London building where James Parkinson used to work. Thank you Alastair Noyce for the invite!

Dr. Viviane Poupon, Brain Canada's President & CEO, highlighted open science's vital role in dementia research at the CCNA-CCNV conference this morning. From a funder's perspective, she outlined ways to leverage it for faster scientific advancement. #OpenScience

The CRU is now officially part of @MyGreenLab Initiative The Neuro! This program recognizes that scientific research has a heavy reliance on single-use items. Expired items from #clinicaltrial kits at the CRU will now help train nurses in the simulation program McGill Nursing

🧠 Calling all Neuroscience Innovators! 🧠 The Neuro – Irv and Helga Cooper Foundation Open Science Prizes are now accepting submissions! Submit your entry and be recognized for your contributions!

#OpenScience #NeurosciencePrize #OpenData #OpenResearch #Neurosciences

#BrainAwarenessWeek highlights the urgency of supporting brain research. The CRU continues to expand the rare neurological conditions it covers. Brains need you. You can support this research, by directing your gift to clinical trials The Neuro:
mcgill.ca/neuro/donate.

Saviez-vous que le gouvernement du Canada avait annoncé un financement de 1,5 milliard $ dans le cadre de sa « Stratégie nationale visant les médicaments pour le traitement des maladies rares »? En 2024, nous n'avons toujours pas de stratégie sur les maladies rares au Canada.

All #rarediseases should be treatable. Working towards effective therapies is essential. Each year, NeuroCRU adds new conditions to its list of trials, like #MOGAD , #FSHD , #Huntingtons and #CJD . Patients deserve the option of accessing investigational treatments. #RareDiseaseDay

Almost 60% of CRU staff are #women . On #IDWGS2024 , we celebrate the expertise + dedication they bring to improving the delivery of #clinicaltrials and supporting patients who face challenging conditions. They make clinical research happen! The Neuro McGill Nursing Centre universitaire de santé McGill

Dr. Ron Postuma, a PI at the CRU, is part of an intl group calling for a paradigm shift in classifying #Parkinsons . They advocate for a biological model to help identify the disease earlier and better target phenotypes in developing treatments. #mcgill thelancet.com/journals/laneu…

The CRU launched its first ever trial into #Huntingtons , a neurodegenerative #raredisease with physical, cognitive + emotional symptoms, diagnosed in the prime of life with only 10-25 year survival. Info: cru.mcgill.ca/mvtdis; [email protected]. The Neuro

Le Programme de formation sur les troubles neurocognitifs de McGill organise une conférence importante à propos du deuil complexe auquel les aidants sont confrontés alors que leur proche est encore vivant. À ne pas manquer: 31 janvier 13h30 mcgill.ca/x/UHK. #alzheimer

✨L’équipe de l’URC vous souhaite de joyeuses Fêtes avec vos proches et une nouvelle année remplie de santé, bonheur et prospérité! 🎉 The team at CRU@The Neuro wishes you a joyous holiday season, and a healthy, happy and prosperous new year!✨

A look back at 2023 at CRU@The Neuro. Plenty of firsts, including the first ever gene therapy in Canada for #FTD and trials in new indications for our unit like #MOGAD , #NMOSD , #FriedrichsAtaxia . Also lots of international collabs. Highlights: cru.mcgill.ca/2023review. The Neuro