Em had to give up work when diagnosed with high-grade endometrial cancer. She is hoping the generosity of others will help her fund the treatment she needs. Show your support: bit.ly/3QDpbbZ

We’ve welcomed Sarah Benger and Shawn Clackett to our team! Sarah joins us as Head of Policy and Public Affairs, while Shawn is Senior Manager Data, Insights and Policy. Together they’ll help achieve our ambitious policy agenda.

A cancer treatment plan includes everything from testing and recommended treatments to expected side effects and results, plus what’s next. Our Rare Cancer Support Guide helps patients understand what questions to ask: bit.ly/3OInM2N

CanForum 2024 stands poised as the catalyst for a ‘Rare Cancer Moonshot’, bringing together patients, leaders and experts in cancer for big thinking and problem solving.Let us unite, think expansively, be brave and go beyond. Let us make a meaningful impact at #CanForum2024 .

The parents of two-year-old Luna are doing everything they can to save their daughter, who has been diagnosed with stage IV #neuroblastoma , a rare #childhoodcancer . To access potentially life-saving treatment overseas, they need to raise over $500k: bit.ly/44xwuYs

When you go Dry this July, you can choose Rare Cancers Australia as the beneficiary of your donations! It’s free to register, with so many benefits for your health. Sign up at: bit.ly/4aXk26L

This National Myeloma Awareness Month, you can head to our Knowledgebase to learn more about the rare cancer that develops from plasma cells in bone marrow: bit.ly/3QPDYR1

A huge thanks to organisers of the Liv Sproule Memorial Round at the weekend, raising awareness and funds to support Australians diagnosed with rare and less common cancers in memory of a beloved hockey player: bit.ly/44oYwVH

RCA Support Groups exist to exchange information, to provide support, and to remind people that they are not alone. To learn more or register, phone 1800 257 600 or email [email protected] #youarenotalone

At age 17, James was diagnosed with a very rare #livercancer . Seven years and five surgeries later, he needs a different type of treatment – but at a cost of $100,000, this option is unstainable. Please support him if you can: bit.ly/3ucT4I5 #youarenotalone

Shane was just 35 when he passed away from colorectal cancer. His story inspired neighbour and friend Kellie to take on the #kosichallenge last month, raising funds and awareness for people with rare cancers.

Our office is closed today as we reflect and acknowledge the men and women who have served our country. #LestWeForget #AnzacDay

It’s a good idea for patients to take a rough timeline of treatments and procedures to appointments, to ensure that a clear and correct record is on hand. Our Treatment booklet has more tips on navigating the health system rarecancers.org.au/page/172/treat…
#RCSG #cancersupport

Beloved grandmother Carol is facing cancer for the fourth time. Her family dreams of Carol seeing her 11 grandchildren grow up, but with the price tag of $80,000, treatment may be out of reach. Please support this family if you can: bit.ly/3QEM4KZ

CanForum 2024: A rare cancer moonshot 🌕️

SAVE THE DATE
📆 Tuesday 20 August, 2024
📍Australian Parliament House, Canberra & Live streamed

The Treatment section of the Rare Cancer Support Guide provides plain English explanations and advice on navigating our complex health system: bit.ly/3OInM2N
#RCSG #cancersupport

Care about helping people with rare cancers? abclisten.page.link/ppfbWxk1r6tjrj… Cancer Council Victoria WEHI (Walter and Eliza Hall Institute) ARC Rare Cancers Australia

Noel pays $3,000 every three weeks for his rare cancer treatment. If he had a different type of cancer, he could pay just $31.60. Listen for more: 🎧️bit.ly/4aTGDjR

If you or someone you love is facing a #rarecancer diagnosis, you don’t have to go it alone. RCA #supportgroups are a safe space to meet others who understand. Phone 1800 257 600 or email [email protected] #youarenotalone

A petition is calling for TGA-approved Belzutifan to be added to the PBS, offering hope for people with Von Hippel-Lindau Syndrome who cannot afford its current price tag of $12,000 per month. Show your support at: bit.ly/3TYfPbo