#UDNI

'Alone we are rare, together we are strong. The NORD Rare Disease Center of Excellence Network'

The webinar will focus on the NORD Rare Disease Center of Excellence Network. The speaker will be Professor Olaf Bodamer and the moderator, Professor AIME LUMAKA
#UDNI
Join us !!

Great event !! To be continued.
See you all in Tiblisi (Georgia) in October 22-23 for the 12th #UDNI Conference.
#undiagnosedhackathon
#rarediseases
Udninternational
Wilhelm Foundation

🎗Oggi è la giornata della #SindromediWilliams , una malattia genetica rara

🎶Chi ne è colpito è caratterizzato da specifiche peculiarità fisiche, ma anche linguistiche e neuropsicologiche, tra cui la predisposizione naturale alla #musica , usata per terapie riabilitative

Towards the international interoperability of clinical research networks for rare diseases: recommendations from th… pubmed.ncbi.nlm.nih.gov/37161573/

Intl Summer School #RareDisease #Registries & #FAIRification of #data #Rome , Sept 25-29 2023 Registration OPEN till May 22👉 bit.ly/3GFmjpS Info & Programme bit.ly/3KXhFGq
Istituto Superiore di Sanità
EJP RD - European Joint Programme on Rare Diseases
#ePAGs #ePAGItalia #ERNeu #UNIAMO #EURORDIS
Claudio Carta

TODAY
April 29 #UndiagnosedDay (at 13.30 CET, Rome time)
organized by #UDNI & #WilhelmFoundation
We are pleased to invite you to participate to the webinar. 'Leaving no one behind'
To follow the event: undiagnosed-day.org

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April 29 #UndiagnosedDay
organized by #UDNI & #WilhelmFoundation
We are pleased to invite you to the webinar.
Leaving no one behind
More undiagnosed-day.org
udninternational.org
wilhelmfoundation.org
#rarediseases
#UndiagnosedChildrensDay2023

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April 29 #Undiagnosed Day
organized by #UDNI & #WilhelmFoundation
We are pleased to invite you to participate to the webinar
Leaving no one behind
More at undiagnosed-day.org
UDNI udninternational.org
Wilhelm Foundation wilhelmfoundation.org
#rarediseases
#Undiagnosed

April 29 #undiagnosedDayorganized by UDNI & @WilhelmFoundation We are pleased to invite you to participate to the webinar.
More info at undiagnosed-day.org

29 April 2023
Undiagnosed Day 2023 by #UDNI & #Wilhelm Foundation
'All Undiagnosed should have a chance to get a diagnosis'.
'Leaving no one behind'
More info undiagnosed-day.org
#UDNI udninternational.org
#rarediseases
#Undiagnosed

The NATIONAL ORGANIZATION FOR RARE
DISORDERS (NORD) Center of Excellence at Boston Children’s Hospital. (Speaker: Olaf Bodamer)
More information: tinyurl.com/2p8t9j4v

RARE DISEASE GRAND ROUNDS:
'RARE DISEASES: EUROPEAN AND ITALIAN
POLICIES AND ACTIONS' (Speaker: Domenica Taruscio)
More information tinyurl.com/4cu85zva

RARE DISEASE GRAND ROUNDS
'SUPPORTING THE ZEBRAS: AN AUSTRALIAN APPROACH TO PERSONCENTRED RARE DISEASE CARE' (Speaker: Emma Palmer)
More information tinyurl.com/bd88fbpw

As member of UDNI and President of ICORD (icord.es) I am honored to invite you to attend the free Webinar HOW CAN ONE HEALTH APPROACHES HELP RARE DISEASES?
Link for registration lnkd.in/dP_zMNpG
Program is here lnkd.in/dAEAneHM

#

Join EJP RD - European Joint Programme on Rare Diseases in Rome for a 3-day training to get instruments and knowledge on novel strategies to foster solutions of undiagnosed #RareDiseases cases
🚨Registration deadline: 15 February
ℹ️Programme, registration & more information: ejprarediseases.org/event/training…

#EJPRD ' #Training on strategies to foster solutions of #undiagnosed #RareDisease cases'
3-5 April 2023 in person at Istituto Superiore di Sanità

REGISTRATION IS OPEN
#EJPRD ' #Training on strategies to foster solutions of #undiagnosed #RareDisease cases'
3-5 April 2023 in person at Istituto Superiore di Sanità

14th #ICORD #Conference : registration open!!
A Community Partnership to Expand Access to Gene and Cell Therapies
More at
icord.es/14th-icord-con…