MND Research
@mndresearch
Research Development team at the Motor Neurone Disease Association of England, Wales & NI. We fund and promote cutting-edge #MND research & organise #alsmndsymp
ID:151456736
https://www.mndassociation.org/research 03-06-2010 13:07:57
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MND Association
Our vision is a ๐ free from ๐ฆ๐จ๐ญ๐จ๐ซ ๐ง๐๐ฎ๐ซ๐จ๐ง๐ ๐๐ข๐ฌ๐๐๐ฌ๐ #MND
My Name'5 Doddie Foundation
Registered Charity, established by Doddie Weir & friends to raise funds to aid research into Motor Neuron Disease & supporting fellow sufferers.
Jayne Halhead
In memory of my Dad, a burly #Lancashire dairy farmer, I'm raising awareness of motor neuron disease #MND/#ALS #MND #MoreNeedsDoing! Championing #Lancashire
Ammar Al-Chalabi
Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://t.co/CR2sIAKgHI #MND #ALS Specialist.
Sally Light
Previously Chief Executive of the MND Association. Ongoing supporter of the MND community. Pond swimmer and yoga student. Views my own.
Whatโs it like to get a diagnosis of #MND ? How do you live with it?
Great combination of patient and academic insight (from Chris McDermott) into how tailored psychological support changes lives for people with #MND BBC Breakfast
Watch below 1hr 35m ๐๐พ
bbc.co.uk/iplayer/episodโฆ
Congratulations to the COMMEND working group and all participants. We urge other centers to adopt these guidelines. Healthcare providers are encouraged to integrate Acceptance and Commitment Therapy,
customized for motor neuron disease needs, into their services. Ammar Al-Chalabi
Results of a study funded by the Association and NIHR Research show Acceptance & Commitment Therapy can improve quality of life for people with MND.
Following research by UCL Psychiatry, we commit to facilitating ACT training for psychologists working with people with MND ๐ง
๐จ Psychological therapy can significantly improve the quality of live for people living with MND
A pioneering study from Chris McDermott and UCL Psychiatry, published today in The Lancet, finds acceptance and commitment therapy (ACT) plus usual care is effective at maintainingโฆ
๐๐๐ญ๐๐ฌ๐ญ ๐ง๐๐ฐ๐ฌ
Researchers from UCL Psychiatry & The University of Sheffield, incl. @profcjmdermott, found a new psychological therapy, called Acceptance and Commitment Therapy (ACT) improves quality of life for people with #MND #ALS , when used with usual care.
mndassociation.org/research/latesโฆ
Really exciting news. Watch out for Chris McDermott on tv from Neuroscience Institute next step to work out how to get ACT into the care for every person with MND. MND Research is funding us to make a start led by ejmayberry
Earlier this week, MND Association research grants manager Sadie Vile joined the โMiles for Mark Smithโ team for 72km. ๐ด
The team are raising money to help us continue to support #MND #ALS research at Oxford MND Research by cycling 1000km from Morpeth to Dorset!
More: milesformarksmith.com
How can we ensure the data from a #clinicaltrial is accurate and reliable? ๐ค
One way is to make sure neither the participants nor researchers know who is receiving the treatment or placebo.
This is a process known as double-blinding.
#ClinicalTrials101 #MND #ALS
๐ฏ๐ฑ๐๐ต ๐๐ป๐๐ฒ๐ฟ๐ป๐ฎ๐๐ถ๐ผ๐ป๐ฎ๐น ๐ฆ๐๐บ๐ฝ๐ผ๐๐ถ๐๐บ
The Intl Symposium is the biggest annual conference dedicated to ALS and MND research.
Each year we bring together researchers from around the world to share new understandings.
Follow the link below to find out more ๐
๐ฃ Call for abstracts! ๐ฃ
Share your research at the 35th International Symposium on #ALS #MND ! #alsmndsymp
Submit your abstract for the chance to present your work at the largest conference dedicated to ALS/MND.
๐ Deadline: 11 July
More details: symposium.mndassociation.org/abstracts/
