I am living with unrelenting #pain w/no #medical input. I am seeking #urgent #help from a #physician , who has an interest in #softtissue #infection & #headandneck #pathology . I'll work with you for as a long as it takes. thx.
#ENT #oralmaxillofacial #ophthalmology #parotidgland

To be abundantly clear, we shouldn’t be punishing patients for having the 'audacity' to want basic care appropriate to their needs & wanting to be treated like a human in the process. Direct frustration towards the systems which thwart these needs, not people pointing them out!

We need to talk about clinical reprisals for patient whistleblowers.

NHS patients don't even have a whistleblowing route. They are 'complainants' not whistleblowers.

NHS treatment of staff whistleblowers is widely recognised but there's near silence on reprisals patients face

I do not at all understand the mystery of grace - only that it meets us where we are but does not leave us where it found us.

- Anne Lamott

PCJ There is not enough solicitors to help with investigation matters and to take legal action for fraud. I hate the word complaint. A complaint is for a minor matter - a mistake or error. If fraud has occurred (altering records etc) and other serious things it becomes criminal.

Leading Integrity

When it looks like a cover-up,
when it sounds like a cover-up,
when it walks like a cover-up,
when those with an interest in denying it is a cover-up,
claim it is not a cover-up,
is it a cover-up?
#PostOfficeInquiry
#PostOfficeScandal

lawgazette.co.uk/news/post-offi…

The second finding of neglect in Avon Coroner's Court this week in another desperately sad case. A jury has found that Lily Lucas' death in Cygnet Hospital near Weston-super-Mare was contributed to by neglect. bbc.co.uk/news/articles/…

Over 1600 votes so far! An overwhelming 80% people said they had been accused of faking their symptoms — a form of #medicalgaslighting . My next newsletter will be a love letter to all of those who have gone through this. 💔 You can get it here:

zedzha.com/join

Not every manuscript will be a best seller; some won't get contracts. That's okay. Keep writing.

I find the ‘safety in numbers’ mentality in #healthcare menacing. “Everyone else has turned a blind eye to her, so we are safe to do it too.’ I wish that I could hold up a mirror to the 50+ #clinicians who I have seen, so that they can see just how chilling their complacency is.

Zed Zha, MD, FAAFP is writing Felicia Kate Solomon Was told by pain psych “You don’t have to be in pain” when I got an increase in pain meds. Psych nurses sent me to him bc they thought my abd. pain was functional. Had expl. surgery a few months later: broad ligament hernia w intermittent ovarian torsion & bowel obstruction.”

My initial #diagnosis in 2014 was orbital #cellulitis . A soft tissue infection is the likely cause of my #pain . If I do have an #SSTI , with a #diagnostic #delay of 11-yrs, I worry that my soft tissue and muscle is now permanently damaged, & beyond repair.
myfacialpain.com/on-facial-cell…

We are working on a podcast series about stigma in pain care. Have you felt stigmatized as a pain patient in our healthcare system? Would you be willing to share your story?

'I believe you.' -- something I say A LOT. Sometimes, this Is enough to make people cry, because medicine has a bad habit of assuming people 'fake' their symptoms.

Have you been accused of (directly/indirectly) 'faking it' by your medical team? Please comment. #AskThePatient ❤️‍🩹

The hardest part of dealing with the UK #healthcare system has been the things #clinicians have said to me; ‘Stop chasing the dragon,’ ‘We’ll wait for you to get really ill before we do anything,’ ‘Stop shopping around.’ It’s the coldness of their words that leaves me so aghast.

The first #ophthalmologist who I saw in 2014, thought that a #staphylococcusAureus infection was the cause of my #facial #pain . I have been taking #antibiotics for 11-yrs, but when I come off them my symptoms return. Could this indicate an #MRSA infection?
myfacialpain.com/on-complicated…

Can't sleep cos of #facialpain . #Music carries me thru nights like these. Stumbled across this banger tonight. Brings back memories of sweaty warehouses in the 1990's. Timeless track. Poignant words. 'She's just like you and me, but she's homeless.' Play!
youtube.com/watch?v=_KztNI…

Agreed on the correcting

‘Revising’ shouldn’t/doesn’t really apply where eg patient did not, at any stage, have facial pain or symptoms for burning mouth syndrome and neither was patient being hypochondriacal or imagining symptoms

Avoidable misdiagnoses

When you write what you know, you stay in control. One of the first things I encourage my writing students to do is to lose control - say what they want to say, break structure.

Natalie Goldberg