Read 👇👇👇 and don't forget it wasn't CHI that wanted the original review to take place.

1yr since Spina Bifida & Hydrocephalus Paediatric Advocacy met with Boston Hospital regarding the external review of spina bifida spinal services.

What has changed for their children ?

🚩 Still left waiting on surgery.

🚩 No Ortho consultant present at reviews.

🚩 Recommendations not implemented. Simon Harris TD

Úna Keightley Amanda Coughlan The Scoliosis Advocacy Network #BackUs David Cullinane T.D. Bernard Mulvany PBP DBN 🥑 Dr Tom Clonan Mary Lou McDonald Stephen Donnelly Simon Harris TD National Patient Safety Office Pádraig Ó Meiscill Children's Health Ireland 4️⃣CHI functions on a reactive basis to political, media or advocacy pressure

Úna Keightley Amanda Coughlan The Scoliosis Advocacy Network #BackUs David Cullinane T.D. Bernard Mulvany PBP DBN 🥑 Dr Tom Clonan Mary Lou McDonald Stephen Donnelly Simon Harris TD National Patient Safety Office Pádraig Ó Meiscill Children's Health Ireland 3️⃣nor does it protect its staff's well-being in that process

Úna Keightley Amanda Coughlan The Scoliosis Advocacy Network #BackUs David Cullinane T.D. Bernard Mulvany PBP DBN 🥑 Dr Tom Clonan Mary Lou McDonald Stephen Donnelly Simon Harris TD National Patient Safety Office Pádraig Ó Meiscill Children's Health Ireland 2️⃣CHI is not an entity that values transparency, it does not function with a child centred approach....

Úna Keightley Amanda Coughlan The Scoliosis Advocacy Network #BackUs David Cullinane T.D. Bernard Mulvany PBP DBN 🥑 Dr Tom Clonan Mary Lou McDonald Stephen Donnelly Simon Harris TD National Patient Safety Office Pádraig Ó Meiscill 1️⃣ Although we met the Boston team for over an hour, no mention ever made of this by Children's Health Ireland review on the review....

A year ago today this was our finally closing statement to the review team from Boston , nothing has changed for the better & children continue to suffer #backus #carecantwait

A year ago today, myself & Amanda Coughlan were in Temple St to give a presentation to reps from Boston who were conducting an external review.

The families themselves were refused permission to speak, so we were their voice.

Read the closing statement we gave 👇
#backus

Homeric Thinking Aisling McNiffe 🇵🇸 #Striving #VoteYesNo Stephen Donnelly The Scoliosis Advocacy Network #BackUs Simon Harris TD RTÉ HSE Health Protection Surveillance Centre (HPSC) HSE Ireland Michael Healy Rae Norma Foley T.D JOE DUFFY European Commission We are in temple Street since Friday as Liam deteriorated 💔all due to scoliosis ... no infection present ... all the effects of untreated scoliosis in a timely safe way and before it came to this 💔

Aaron Daly Pamela Dennehy Regina Doherty TEDDYS ICECREAM Simon Harris TD Barry Ward 🇮🇪 🇪🇺 DúnLaoghaireTown.ie Bernard Gloster Spina Bifida & Hydrocephalus Paediatric Advocacy Irish Country Living CHi Stephen Donnelly NORD The Scoliosis Advocacy Network #BackUs Well let’s be honest, since he took on the role as Taoiseach he has avoided the question at every opportunity and the only time he did answer he tried to insinuate it was a HSE failing and not his, when he was minister for health. 🙃

Pamela Dennehy Regina Doherty TEDDYS ICECREAM Simon Harris TD Barry Ward 🇮🇪 🇪🇺 DúnLaoghaireTown.ie Bernard Gloster Spina Bifida & Hydrocephalus Paediatric Advocacy Irish Country Living CHi Stephen Donnelly Bernard Mulvany PBP DBN 🥑 NORD The Scoliosis Advocacy Network #BackUs I hope you get a better response from him than we did when we desperately needed surgery. Hard to believe children are still going through the same pain & suffering.

Sending our best wishes 🥲

Stephen Donnelly #carecantwait

Keara The Scoliosis Advocacy Network #BackUs Simon Harris TD Fine Gael Maria Walsh MEP Sligo Rovers Frank Feighan T.D. And my child Simon Harris TD, , you and Stephen Donnelly need to step up. Two years waiting for an initial consultation where we went from 37°curves to 60° curves! This is children's lives you have on your hands!

Homeric Thinking Pamela Dennehy Stephen Donnelly The Scoliosis Advocacy Network #BackUs Simon Harris TD RTÉ HSE Health Protection Surveillance Centre (HPSC) HSE Ireland Michael Healy Rae Norma Foley T.D JOE DUFFY European Commission Moved to Temple st now as deteriorated so much.

Simon Harris TD Fine Gael Maria Walsh MEP Sligo Rovers Frank Feighan T.D. What about my child’s scoliosis surgery Simon Harris TD !!!??? My son is 12 snd you promised 7 years ago he would not have to wait more than 4 months for his operations??? The healthcare system is in shambles to the neglect of children and disabled citizens of #ireland #scoliosis

'No child will be left waiting' Simon Harris TD you probably passed it on (like they do with every thing) to Stephen Donnelly so why is nobody helping this family?

Pamela Dennehy Aisling McNiffe 🇵🇸 #Striving #VoteYesNo Stephen Donnelly The Scoliosis Advocacy Network #BackUs Simon Harris TD RTÉ HSE Health Protection Surveillance Centre (HPSC) HSE Ireland Michael Healy Rae Norma Foley T.D JOE DUFFY European Commission 2 wks ago, the Taoiseach told the Dáil he had asked Min. Donnelly for Liam's urgent surgery needs to be addressed. Why no action since from DoH, CHI or ANYONE?

Liam lies in pain in UHK & his Mam is being kept clueless by the system!

How CRUEL is that? WTAF are they waiting for?

Niamh Humphries Yes but these stories are necessary to acknowledge that there is a problem, and hopefully encourage Department of Health Stephen Donnelly to do something about it.

This is neglect, no one can say they weren’t aware, didn’t know.
Simon Harris TD
Stephen Donnelly
Bernard Gloster
Liam needs all post op assessments completed, review by surgical team, surgery.
He’s in Temple Street- no excuses

The Scoliosis Advocacy Network #BackUs Simon Harris TD Children's Health Ireland Stephen Donnelly Dear Lord, that poor, poor child!!! My heart breaks for him, and knowing what a mother's pain feels like in this situation, it breaks for her, too. This is nothing short of state sponsored abuse, in my opinion.

Regina Doherty TEDDYS ICECREAM Simon Harris TD Barry Ward 🇮🇪 🇪🇺 DúnLaoghaireTown.ie Liam wants ice cream too ... sadly there is no room in his crushed tummy for ice cream 😢 and anyway he is living in a hospital now 4 weeks and 1 day as the effects of not having surgery are destroying his body Simon Harris TD Bernard Gloster Spina Bifida & Hydrocephalus Paediatric Advocacy Irish Country Living @chi