Rhiann Johns(@serenebutterfly) 's Twitter Profileg
Rhiann Johns

@serenebutterfly

Documenting life with #FND or #FunctionalNeurologicalDisorder. Articulating what it is to love with a #chronicillness and #chronicpain. TV fanatic!
#spoonie

ID:30446334

linkhttp://brainlesionandme.com calendar_today11-04-2009 13:24:39

38,7K Tweets

3,0K Followers

2,5K Following

Rhiann Johns(@serenebutterfly) 's Twitter Profile Photo

'But cancelling is not a weakness. You push yourself all the time to do things that you need to do, even when it feels like too much. It’s never easy to say no, but you need to let your body rest.' 🔗themighty.com/topic/chronic-… via The Mighty

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Rhiann Johns(@serenebutterfly) 's Twitter Profile Photo

'As I write, I try not to cry or swear as I fight feelings of inadequacy. I feel less than as I confess to a faceless bureaucrat to everything my body no longer allows me to do.' 🔗brainlesionandme.com/im-on-benefits… via Rhiann Johns

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Rhiann Johns(@serenebutterfly) 's Twitter Profile Photo

'All the that I had been exposed to had manipulated me into the belief that being was something to be ashamed of, something to hide.' 🔗myblurredworld.com/2024/05/26/add… via e l i n

Twitter

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Rhiann Johns(@serenebutterfly) 's Twitter Profile Photo

'But living with , chances are, not all plans and dreams can or will become reality. But that doesn’t mean you can’t pursue meaningful goals – you just have to redefine what ‘ ’ means to you.' 🔗thehealthsessions.com/redefine-succe… via The Health Sessions

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Rhiann Johns(@serenebutterfly) 's Twitter Profile Photo

'I grieved for my old self for a long time. There are days when I still do. Daily life can be unpredictable, so I try to enjoy every single good day and never take those days for granted.' 🔗thejournal.ie/readme/multipl… via TheJournal.ie

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Rhiann Johns(@serenebutterfly) 's Twitter Profile Photo

'Monitoring your symptoms, along with what you eat and do, is an effective way to see what your body is doing and when. It allows you to see what really affects your symptoms.' 🔗bloomingmindfulness.co.uk/the-importance… via 🦋BeverleyButterfly🦋

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Thomas Leahy(@thomasdmleahy) 's Twitter Profile Photo

I spoke with WalesOnline 🏴󠁧󠁢󠁷󠁬󠁳󠁿 about and the health service in 🏴󠁧󠁢󠁷󠁬󠁳󠁿 and beyond too. Hopefully raising awareness on chronic illness needs during a key time MS Society Cymru MS Society UK walesonline.co.uk/news/health/i-…

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Rhiann Johns(@serenebutterfly) 's Twitter Profile Photo

Just finished the incredible by C.L. Taylor - such a compelling and compulsive read. Even on holiday, and with a lot of things going on, I had a hard time prying myself away from the book desperate to know what was going to happen next. A fantastic read!

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Rhiann Johns(@serenebutterfly) 's Twitter Profile Photo

'The world moves on, but still, I remain trapped, my body tethered to the confines of my home, wishing like Ariel that I could be part of the world outside my prison.' brainlesionandme.com/why-im-not-fak… via Rhiann Johns

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Linka (She/her) ♿️🏳️‍🌈💜(@emilylinka) 's Twitter Profile Photo

Is anyone else feeling deeply hopeless about this election? Like sure ok Tories out, but labours policies have become almost identical. As a disabled person, I have no faith in them actually protecting me or making life better because they’ve done nothing to show they will.

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Farrukh(@implausibleblog) 's Twitter Profile Photo

Beth Rigby says so many no confidence in Rishi Sunak votes went in, that he was forced to call a general election in the rain

Sophy Ridge, 'Launching your election campaign to the sound of Things Can Only Get Better.. It's not the greatest optics'

Stellar reporting and coverage

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Rachel Charlton-Dailey 💖💜💙(@RachelCDailey) 's Twitter Profile Photo

Three things to do:

Make sure you're registered to vote
gov.uk/register-to-vo…

If you're going to be away or travelling on 4th july get a postal vote
gov.uk/apply-postal-v…

Check you have the right ID or get photo ID
gov.uk/apply-for-phot…

LETS GET THESE FUCKERS OUT

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Lucy Webster(@Lucy_Webster_) 's Twitter Profile Photo

Just your regular reminder that the disability benefits system is literally designed to stop disabled people getting the benefits they're legally entitled to

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Princess, The Tower(@APainPrincess) 's Twitter Profile Photo

“This book is a masterpiece on the daily challenges of and illness and learning to find with our when we face them. A book that is beautifully written and hard to forget.” buff.ly/3K9PVgC Rhiann Johns

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Rachel Charlton-Dailey 💖💜💙(@RachelCDailey) 's Twitter Profile Photo

Amongst the inevitable inspo and overcoming narratives of the Paris Paralympics it's important to remember that the games are so far removed from real life for disabled people that disabled supporters can't even get around the host city bbc.co.uk/news/articles/…

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Menieres Resources, Inc. 💫(@MenieresResourc) 's Twitter Profile Photo

Every day, however, I try my best. I try my best to do what I can and not become consumed by thoughts of what I cannot. Rhiann Johns

buff.ly/3xW4XhW

Every day, however, I try my best. I try my best to do what I can and not become consumed by thoughts of what I cannot. @serenebutterfly buff.ly/3xW4XhW
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