Rhiann Johns
@serenebutterfly
Documenting life with #FND or #FunctionalNeurologicalDisorder. Articulating what it is to love with a #chronicillness and #chronicpain. TV fanatic!
#spoonie
ID:30446334
http://brainlesionandme.com 11-04-2009 13:24:39
38,7K Tweets
3,0K Followers
2,5K Following
'But cancelling is not a weakness. You push yourself all the time to do things that you need to do, even when it feels like too much. It’s never easy to say no, but you need to let your body rest.' 🔗themighty.com/topic/chronic-… via The Mighty
#ChronicIllness #ChronicLife
'As I write, I try not to cry or swear as I fight feelings of inadequacy. I feel less than as I confess to a faceless bureaucrat to everything my body no longer allows me to do.' 🔗brainlesionandme.com/im-on-benefits… via Rhiann Johns
#ChronicIllness #Disability #Benefits #ChronicLife
'All the #ableism that I had been exposed to had manipulated me into the belief that being #disabled was something to be ashamed of, something to hide.' 🔗myblurredworld.com/2024/05/26/add… via e l i n
#Disability #Disability Twitter #InternalisedAbleism #ChronicLife
'But living with #chronicillness , chances are, not all plans and dreams can or will become reality. But that doesn’t mean you can’t pursue meaningful goals – you just have to redefine what ‘ #success ’ means to you.' 🔗thehealthsessions.com/redefine-succe… via The Health Sessions
#ChronicLife
'I grieved for my old self for a long time. There are days when I still do. Daily life can be unpredictable, so I try to enjoy every single good day and never take those days for granted.' 🔗thejournal.ie/readme/multipl… via TheJournal.ie
#ChronicIllness #ChronicPain #ChronicLife
'Monitoring your symptoms, along with what you eat and do, is an effective way to see what your body is doing and when. It allows you to see what really affects your symptoms.' 🔗bloomingmindfulness.co.uk/the-importance… via 🦋BeverleyButterfly🦋
#ChronicIllness #ChronicPain #ChronicLife
I spoke with WalesOnline 🏴 about #multiplesclerosis #thisisms and the health service in 🏴 and beyond too. Hopefully raising awareness on chronic illness needs during a key time MS Society Cymru MS Society UK walesonline.co.uk/news/health/i-…
Just finished the incredible #EveryMoveYouMake by C.L. Taylor - such a compelling and compulsive read. Even on holiday, and with a lot of things going on, I had a hard time prying myself away from the book desperate to know what was going to happen next. A fantastic read!
'The world moves on, but still, I remain trapped, my body tethered to the confines of my home, wishing like Ariel that I could be part of the world outside my prison.' brainlesionandme.com/why-im-not-fak… via Rhiann Johns
#ChronicIllness #ChronicallyIll #InvisibleIllness #ChronicLife
“This book is a masterpiece on the daily challenges of #chronicpain and illness and learning to find #peace with our #disabilities when we face them. A book that is beautifully written and hard to forget.” buff.ly/3K9PVgC Rhiann Johns #chronicallyill #booklovers
Every day, however, I try my best. I try my best to do what I can and not become consumed by thoughts of what I cannot. Rhiann Johns
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