Giulia Bould(@GiuliaBould) 's Twitter Profile Photo

It's & I live with a rare, incurable disorder

Just 8,400 in the UK have Addison's Disease & means my adrenal glands don't work. I'm kept alive artificially with steroids

But I can go into adrenal crisis & need urgent care before it's too late

It's #RareDiseaseDay & I live with a rare, incurable disorder

Just 8,400 in the UK have Addison's Disease & means my adrenal glands don't work. I'm kept alive artificially with steroids

But I can go into adrenal crisis & need urgent care before it's too late

#AddisonsAwareness
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Vivid Awareness Apparel(@vividawareness) 's Twitter Profile Photo

Addison's Warrior: Show your spirit, strength & courage with this symbol of resilience & determination. Wear this hoodie as a way to proclaim your Warrior status & take on life’s challenges head-on!
vividawarenessapparel.myshopify.com Awareness Disease

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Giulia Bould(@GiuliaBould) 's Twitter Profile Photo

Big THANK YOU to Wirral NHS Hospitals - Arrowe Park & Clatterbridge for allowing me to help implement a new emergency protocol at A&E for those in an Addison's Disease crisis

It's so rare most medics haven't seen it but for those of us with it time's against us. Urgent treatment is life or death

Big THANK YOU to @WUTHnhs for allowing me to help implement a new emergency protocol at A&E for those in an Addison's Disease crisis

It's so rare most medics haven't seen it but for those of us with it time's against us. Urgent treatment is life or death 
#AddisonsAwareness #NHS
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Vivid Awareness Apparel(@vividawareness) 's Twitter Profile Photo

Addison’s disease may be rare, but our love and support for those affected are anything but. Join us in wearing this hoodie and spreading awareness far and wide. Together, we can make a difference. 💙🤗
vividawarenessapparel.myshopify.com

Addison’s disease may be rare, but our love and support for those affected are anything but. Join us in wearing this hoodie and spreading awareness far and wide. Together, we can make a difference. 💙🤗 
vividawarenessapparel.myshopify.com
#AddisonsAwareness #addisonsdisease #said #pai
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Libby Humphris(@LibbyHumphris) 's Twitter Profile Photo

I've now been sat in a chair for 22 hours waiting for a bed in hospital, more needs to be done to help those with rare conditions receive adequate care!

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Giulia Bould(@GiuliaBould) 's Twitter Profile Photo

Thank you so so much! If I can help please DM me.

There's great info for paramedics on Addison's Disease Self-Help Group (ADSHG) website on treating an Addison's Disease Crisis

Also I'm happy to come and chat anytime on the best way to help someone in an Addison's Crisis

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