#Teamwork with #parents of #CSHCN ( #XLMTM ), #pharma , #researchers , #clinicians at #TNMD2022 for cures and care ⁦TREAT-NMD⁩

Presenting for @FVIndiana on Supporting CSHCN at School at #ISHN2018

Out today in JAMA Pediatrics - Childcare-related employment disruption increased by >30% in 2020 (from 2016-2020 National Survey of Children's Health).
dx.doi.org/10.1001/jamape…

#pediatrics #childcare #cshcn #COVID19 #publichealth #parenting #nsch CYSHCNet - Pediatric Health Systems Researchers American Academy of Pediatrics

Interviewing Marlyn Wells, Duke Health⁦ Family Partner, about financial and legal issues in #healthcaretransition . #transition #CSHCN #teens #adolescentmedicine Duke Children's Duke Psychiatry & Behavioral Sciences

Our paper in Journal of Racial and Ethnic Health Disparities highlights unique #communication challenges #Hispanic families of #CMC #CSHCN face. #PedPC . Thanks to coauthors Stockton Beveridge Margaret Bryan Ellis !
urldefense.com/v3/__https:/rd…$

So proud of my Master’s students from Boston University School of Public Health for #advocating on behalf of #families of #children with special health care needs at the MAStateHouse to Sen. Joan B. Lovely ! MassGeneralChildren Sandro Galea Harvard Medical School Boston U Chobanian & Avedisian School of Medicine #thinkteachdo MCH in ACTION American Academy of Pediatrics #cshcn Elizabeth Warren #wecare

Great resource for nurses and families to help explain medical procedures to kids: Simply Sayin'
#CSHCN apps.apple.com/us/app/simply-…

A1: Health literacy is even more challenging for PWD and CSHCN. Family to Family Health Centers can help! Find yours here: fv-ncfpp.org #coverage2care

Health care transitions from pediatric to adult health care remain a challenge for CSHCN, their families, and their clinicians. Join us December 7 at 10 am to learn about current transition research and recommendations for future investigation. lnkd.in/g3-gA-sc

Loving the #NBDPN2020 session on communicating effectively with underresourced populations. Big focus on the power of #language in amplifying or reducing #stigma . Great work from OR Health Authority and March of Dimes. #BeyondLabels #BirthAnomalies #CSHCN #TitleV #infanthealth

Bronx #mother opens store that sells adaptive, fashionable clothing for #kids with #SpecialNeeds --Johnson says she decided to help other children moving forward in her daughter's memory. #CSHCN #Bronx Montefiore Pediatrics Albert Einstein College of Medicine - Official Commonwealth Fund

Parent concerns may be different from their current priorities. #ShareDecisionMaking is crucial to developing a treatment plan that everyone can agree on. #autism #CSHCN #teamwork ow.ly/7lnX30j3YCi

Happening Now: Tune in to hear the winners of the MCHB Grant Challenges: Preventing Childhood Obesity, Care Coordination for CSHCN, Remote Pregnancy Monitoring, and Addressing Opioid Use Disorder #mchbgrandchallenges Call-in: 877-…lnkd.in/d-MrtPc lnkd.in/d3ensyW

#PedsICU #CSHCN

Thrilled to co-author American Academy of Pediatrics commentary on Behavioral and Social Determinants of Oral Health in #CSHCN with Pitt Dental Medicine’s Jacqueline Burgette, DMD, PhD

pediatrics.aappublications.org/content/early/…

Great to see former Montefiore Pediatrics Chief Resident Dr. Jennifer Peralta, now at UCLA #NCSP present at the 2021 National Clinician Scholars Program Meeting today. Montefiore Health System Albert Einstein College of Medicine - Official Suzette Oyeku, MD, MPH #CSHCN

Do you have a #CSHCN child with special health care needs? Fill out the ACEP Members and AAP, Wisconsin Chap. Emergency Information Form to provide #EMS with critical information during an emergency. Download the form here: chawisconsin.org/par #EMS week

Toothbrushes adapted for CSHCN

#Dental_by_Hadeel

Article from Health Affairs highlights NASHP suggestions for states helping CSHCN (now and post-pandemic) including making state and federal policy changes enacted during #Covid_19 permanent and using data to better address racial inequities healthaffairs.org/do/10.1377/hbl…