June is #DravetSyndrome AwarenessMonth . Let’s unite to raise awareness of #DravetSyndrome , a rare and complex form of epilepsy. We acknowledge the significant impact Dravet has on patients, families & caregivers and we are inspired by the enduring commitment within the community.
#patitos2023 vete preparando que en nada empieza la carrera de patitos!!! La recaudación es para la Fundación Síndrome de Dravet
🧠June is Dravet Syndrome Awareness Month. Today I was invited by a local french radio station to raise awareness about this rare and severe form of epilepsy. We need a cure please🙏Dravet Syndrome UK Fundación Síndrome de Dravet asdravet Dravet Syndrome Foundation DravetSyndromeJP Sindrome de Dravet Dravet Syndrome Foundation Spain
AGE Program - Adult Genetic Epilespy CureCHD2.org Gemma Carvill, PhD SynGAP Research Fund has moved to @cureSYNGAP1 Dravet Syndrome Foundation UToronto Neurology Rikke S. Møller Ángel Aledo-Serrano Dr. Heather Mefford Ingo Helbig Stéphane Auvin Allan Bayat, postdoc in neuroscience UHN Research UHN Foundation Krembil Brain Institute KITE Research Institute Neurology Today Child Neurology Foundation Kette Valente Elizabeth E. Gerard, MD, FACNS Andreas Brunklaus Dennis Lal we hope it was a great meeting💜
We are humbled to collaborate with groups like Dravet Syndrome Foundation,Dravet Syndrome UK and Dravet Syndrome Foundation Spain and others, learning from them and working alongside them to develop the next generation of #Dravet treatments.
June's #DravetAwarenessMonth is our annual opportunity to shout even more loudly about the need for more awareness, support & treatment for everyone affected by #DravetSyndrome .
📸 Use our profile pic frame to start spreading the word: twibbon.com/support/ds-awa…
#EveryFamilyCounts
Carolyn Fahm TalkAboutIt.org The Notorious EEG (M. Scott Perry MD) Dravet Syndrome Foundation My daughter has Dravet Syndrome. Those treatments he is referring to are in the clinical trial phase. Fingers crossed, my daughter will be joining one of the trials soon.
