#PansPandas hour
#PPUK
#PansPandas

Please can we include #PansPandas on this list 🙏 #PansPandas Hour

𝗜𝗙 𝗔 𝗖𝗛𝗜𝗟𝗗 𝗖𝗛𝗔𝗡𝗚𝗘𝗦 𝗦𝗨𝗗𝗗𝗘𝗡𝗟𝗬 𝗢𝗩𝗘𝗥𝗡𝗜𝗚𝗛𝗧 𝗧𝗛𝗘𝗡 𝗣𝗟𝗘𝗔𝗦𝗘 𝗖𝗢𝗡𝗦𝗜𝗗𝗘𝗥 𝗣𝗔𝗡𝗦/𝗣𝗔𝗡𝗗𝗔𝗦!

𝗟𝗜𝗡𝗞 𝗧𝗢 𝗔𝗥𝗧𝗜𝗖𝗟𝗘: thetimes.co.uk/article/d2c071…

#PANSPANDAS #panspandasawareness #mustread #medicalnews #sundaytimes #helpchildren #NOW

🎥Recording Now available!

DEMYSTIFYING PANS/PANDAS PART 2, WITH EXTENDED Q&AS ~ With Dr. Nancy O'Hara

youtube.com/watch?v=D6vK9h…

#PANSPANDAS

It’s approx night 1,400 without giving my beautiful boy a kiss goodnight. Imagine that. Hardest thing I can imagine. Here’s when life was good , miss you and love you mate ❤️❤️❤️ #panspandas

Thank you for this Dr Annie Cox RMHN Many parents with #pansPandas children are stuck between medical & psychological services, feeling misunderstood, accused and bewildered, 😔 - multiple, sudden overnight symptoms ‘following infection’ is a huge clue! #PansPandasHour

#PansPandas is not rare just rarely diagnosed here in UK
#PansPandas hour
#PansPandas UK

You probably know someone who has #panspandas probably undiagnosed. Read on and be part of changing the outcomes of those that suffer needlessly.

#PansPandas massively affected my son in so many areas of his life.
Better understanding and awareness are essential.
#PansPandas hour
#PPUK

#panspandas community - this looks interesting 👇🏻

🔊TOMORROW!

🎙️ Prof. Craig Shimasaki, PHD, MBA

📚The Autoimmune Brain Panel™ & Neurological Symptoms; CaMKII in Neurodevelopmental Disorders

📅 DATE: Wed 8th May 20

⏰ 19:00 BST
20:00 CEST (CEST), 14:00 ET (ET)

📋REGISTER: aonm.org/AutoimmuneBrai… 🧬

#panspandas

😢 #PansPandas Awareness #PansPandas fosters.com/story/lifestyl…

So grateful ❤️

nationaldiversityawards.co.uk/awards-2024/no…

#advocate #panspandas #tourettes #autism

3 years my son suffered with what we now know to be #PansPandas
#PansPandas impacts the whole family and destroys lives. #NHS wake up!!

If treated early and in a timely fashion, PANDAS/PANS can enter remission entirely, especially in younger children. Untreated PANDAS/PANS can cause permanent debilitation and, in some cases, can become encephalitic. Early treatment leads to remission! #panspandas

Could have written this myself, exactly how it was for our son for 3 very painful years. JUST 3 months of #PansPandas treatment our beautiful boy said 'it feels like I'm back'
#PansPandas hour
#PPUK

Blackpool pleasure beach was one of our favourite places. I’ve not been back since you’ve been ill , but one day maybe …. I love you mate ❤️ #pans #pandas #pans pandas #MedTwitter

Despite having experience of #PansPandas with my son, this story is particularly heartbreaking. Please educate yourselves on these conditions, tell teachers, doctors, carers - better awareness and clearer treatment plans are the only hope for families like ours.

If your child has PANS/PANDAS have you checked your home for mold? Mold is especially likely if you have multiple sick kids, have experienced treatment failure, improve while away from home or have more symptoms coming home after being away.
#PansPandas
#MoldCausesPans

Thank you to Notes to my boy ✉️ Louise Eccles PANS PANDAS UK for this article highlighting #PANSPANDAS and the immense suffering it causes. So easy to treat but rarely diagnosed leading to years of needless unbelievable trauma and distress.