This is our son Emmett. Today, we are celebrating Rare Disease Day. His rare chromosome duplication is one of three known cases in the world. As you can see he is one happy and very cool dude. #RareDiseaseDay2021
If I came to this world with a diagnosis of 'rare', I should be a rare one. I'm quite sure that studying genetics (in BSc) & doing MSc in Neuroscience whilst having diagnosed by a neuromuscular rare disease called Spinal Muscular Atrophy (SMA), is pretty rare. #RareDiseaseDay2021
pandemi den önce #nadirhastalıklar etkinliği #RareDiseaseDay2021 #nadirhastalıklar günü #nadirizumutluyuz #nadirinfarkındayız
We have been told it is in his head. We have been told there is nothing we can do.There is always something you can do.Thank you #RareDisease community for giving us a voice and the tools with which to fight. #RareDisease Truth #RareDisease Day2021 Cure VCP Disease AllStripes
#Coruña - Esta noche varios edificios se iluminan de verde con motivo del #DíaMundialEnfermedadesRaras
#RareDiseaseDay
#RareDiseaseDay 2021
It’s #RareDiseaseDay2021 and Brandon wants to say thank you to all of his supporters. My students are always cheering him on, especially 7th period.
Today is #RareDiseaseDay2021
Thank you God ✝️for giving this girl the strength and courage to fight daily. Thank you to every person that has ever said a 🙏🏻 for her.
Dani Jo Hearl, we sure do ❤️ you.
Congenital Central Hypoventilation Syndrome isn't going to stop you ‼️
Yıllar geçti, sorunlar değişmedi #nadirhastalıklar #RareDiseaseDay2021 #nadirhastalıklar günü #nadirizumutluyuz #nadirinfarkındayız @ScienceAsk Behçet Hastalığı
#sicklecell disease is a rare disease, but also a neglected disease.
Let’s use today (and every day) as an opportunity to raise awareness.
#sicklecell #RareDiseaseDay2021
Today is #RareDiseaseDay2021 , if you could take a little bit of time to read about a rare disease called Multiple System Apathy (MSA), MSA is like Parkinsons. MSA slowly deteriorates one's motor skills. MSA had affected my life greatly as my father passed away from MSA in 2012.
We run too!! Our project on fire for #RareDiseaseDay2021 . 10 Km 🏃♀️🏃♂️💪🇪🇺👏🏼👏🏼always with FEDER | Enfermedades Raras for the education inclusion. Erasmus+ #WomensDay
We lighted up the Kwame Nkrumah Mausoleum to mark #RareDiseaseDay2021 #RareIsMany #RareIsStrong #RareIsProud
🌉 Povodom obilježavanja Dana rijetkih bolesti, most Milenijum večeras je u zelenoj, plavoj, rozoj i ljubičastoj boji 💚🔵🌸💜
#RareDiseaseDay2021
#GlavniGradPodgorica
It is #RareDisease Day ! What do you think of when you hear #RareDisease ? I would bet that it’s not me. It’s so important to remember that so many rare diseases & #disabilities are INVISIBLE #ShareYourRare #EhlersDanlosSyndrome #EDS #InvisibleDisabilities #RareDisease Day 2021
Las #enfermedadesraras son a menudo estigmatizadas y discriminadas, y muchas 👨🦱👩🦰👨🦳 que viven con estas patologías se sienten excluidas de participar en empleos y de la total integración y productividad dentro de la sociedad.
#RareDiseaseDay2021
#DíaMundialEERR
#JuntosSomosMás
#ShowYourRare #ShowYourStripes #RareDiseaseDay #RareDiseaseDay 2021
#CIAAG #CIAAG Strong
Celebrating #rarediseaseawareness today and every day!
It’s #RareDiseaseDay2021 Here’s our 1 in 20,000 little superhero at the beginning and (hopefully) at the end! 🥰 Know the signs and get anything checked out asap. Still so thankful our GP listened and acted even though he couldn’t see anything 👍Andrew Boggs Gartcosh Primary Sch
