First Patient Begins Newly Approved Sickle Cell Gene Therapy
by Gina Kolata for The New York Times | 06 May 2024
'A 12-year-old boy in the Washington, D.C., area faces months of procedures to remedy his disease. “I want to be cured,” he said.'
#sicklecell (GIFT)
nytimes.com/2024/05/06/hea…

A big shout out to every Sickle Cell Warriors who are putting in the work every day!

Tag and appreciate a Sickle Cell Warrior doing their best at work.

#sicklecell #warrior #sicklecell awareness #workersday

Hello May I!!!!!!!!!
#SickNewWorld #Sicklecell #WorkersMemorialDay

Application link: scancainc.org/wp-content/upl…

#scholarship #sicklecell scholarahip #SCANCA #classof2024 #sicklecell disease #sicklecell #sicklecell awareness

I’m so happy to hear that NICE have approved Voxelotor on the NHS for the treatment of sickle cell. I have been on the medical trial for this since 2018.

Due to complications I can’t have blood transfusions and this has helped to increase my haemoglobin.

#sicklecell

In one of my favorite cities for the #ASH #SickleCell Centers Workshop but I need to make a detour to speak to the occupants of that building about top down change for SCD care.

#Sicklecell #Crisis
Living with sickle cell online dairy

Are you a mom of a #sicklecellwarrior ? Throughout the month of May 2024 we will be celebrating the tenacious spirit of mothers. ⁠
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Tag a Warrior Mom in the comments below!⁠
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#WarriorMom #MomsofInstagram #Motherhood #SickleCell #SickleCell Awareness #ScafCincy

I am so tired of being in pain. The fact that my blood pressure is this high is an indication that I need to get my hip replacement surgery done ASAP! It's given out on me so many times in the past week including falls. I keep trying to go but I can't do it anymore. #sicklecell

Join Rahul Chaturvedi and Dr. Ted Love as they delve into the world of biotech, discussing advancements in sickle cell treatment and overcoming funding challenges. Don't miss out! #Biotech #SickleCell #Innovation

Listen to the episode: on.soundcloud.com/bbs8fq1JXLraFX…

Happy New Month to you...
We pray this month gives you memories that'll lead you to your greatest height 🤗✨🥳
#aaronsicklecellcarefoundation #SickleCellFoundationNigeria #SickleCellDisease #sicklecell warrior #sicklecell anemia #sicklecell #SICKLECELLANEMIA #sicklecell awareness

US: 12-Year-Old Boy Receives World's First Commercially Approved Gene Therapy for Sickle Cell Disease

Read👇
lokmattimes.com/international/…

#US #SickleCell #SickleCell Therapy

HAPPENING TOMORROW!!! click this link to register 👉 us06web.zoom.us/meeting/regist…

#sicklecell #springworkshop #FDA #scanca

Did you know that the fundraiser for #SickleCell Prodigy social media manager is still on?

Your donations matter a little, your shares go a long way to helping us reach our fundraising goal.

Use the link below to donate.
gofund.me/b2000b6b

#SickleCell #AvascularNecrosis

How much do you know about Sickle Cell Anemia?
While we're bringing awareness to these issues, we're often learning new things ourselves.

Sufferers are often denied pain meds at the hospital. And accused of being drug seekers. 🤦‍♂️

#sicklecell #Awareness

🗓️ May is National Mental Health Awareness Month, a reminder to prioritize our emotional well-being.

In the sickle cell community, therapy isn't just about coping, it's about thriving.

#MentalHealthAwareness #SickleCellWarriors #sicklecell #ibelieveintherapy

First Patient Begins Newly Approved Sickle Cell Gene Therapy Gift article from The New York Times. You can read it for free without a subscription. The New York Times Gina Kolata #sicklecell #GeneTherapy nytimes.com/2024/05/06/hea…

Superb B positive choir opening BSH ASM 24
#sicklecell
BSH - Haematology Give Blood NHS 🩸🩹

Do you have novel research or a clinical case on #sicklecell disease or #thalassemia ? Abstract and clinical case submission for #ASCAT2024 are open for one more month.
Submit your work by May 31: eha.fyi/ASCAT2024
#thalassaemia #SCD #sicklecell disease