Brianna Albers considers stepping back from social media and exploring alternate ways to be a disability advocate. bit.ly/4brzqYy
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
New publication! 📣 Spinal Muscular Atrophy. Digital Spotlight by RARE Revolution Magazine 🧬We are delighted to invite you to read the latest Digital Spotlight on Spinal Muscular Atrophy by Rare Revolution Magazine. Read here: bit.ly/3JOIriI #SpinalMuscularAtrophy #RareDisease
Known as the Portable Mobility Aid for Children, this harness system is unlike traditional body weight support systems. See how: bit.ly/3UHrgF5
#SpinalMuscularAtrophy #SMAResearch #SMANews Today #SMANews
'Adherence and Persistence Among Risdiplam-Treated Individuals with #SpinalMuscularAtrophy : A Retrospective Claims Analysis'
Read #openaccess here: link.springer.com/article/10.100…
#SMA #NeuroMuscular
Amazing for days like this when i have my mini attached to my hip. Enjoying the day out and about and so thankful #Müv #Müv Fl #AltmedFlorida #Disposable #Indica #Hybrid #Sativa #DoMoreMüv #FloridaCannabis #FloridaMMJ #MuscularDystrophy #SpinalMuscularAtrophy #FloridaCannabis Club
In terms of one SMA gene therapy, researchers acknowledge that “some gaps in its safety profile still need to be investigated.” bit.ly/4bib97l
#SpinalMuscularAtrophy #SMAResearch #SMANews Today #SMANews
The Passy Muir Valve helps with voice and speech production and improves swallowing. How has it helped you?
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
Clogged feeding tubes can be scary and dangerous. What are your best tips for helping to prevent them?
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
🎧 The journey with #SpinalMuscularAtrophy (SMA) is unique for everyone, and the SMA My Way podcast is here to recognise and celebrate that.
Join us to listen to the powerful stories of our SMA My Way Champions: spkl.io/60124N6Mr
Diagnosis of challenging #spinalmuscularatrophy cases with long-read sequencing. Authors from Fudan University
Full text: jmdjournal.org/article/S1525-…
Researchers note that, while treatments have expanded, there exists a “persistent need for validated biomarkers” to measure individual responses. bit.ly/3UQFzIJ
#SpinalMuscularAtrophy #SMAResearch #SMANews Today #SMANews
The treatment allowed the girl to sit alone and play with her toys for two minutes after seven months of therapy. Explore how: bit.ly/3Up7ldx
#SpinalMuscularAtrophy #SMAResearch #SMANews Today #SMANews
The past couple of years have forced Brianna Albers to build her muscle of persistence, but her “dogged stubbornness” has paid off. bit.ly/3JzyWUD
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
'Long-Term Comparative Efficacy and Safety of Risdiplam and Nusinersen in Children with Type 1 #SpinalMuscularAtrophy '
#SMA #neuromuscular #MAIC
Read here #openaccess with a #video and #PLS : link.springer.com/article/10.100…
After living with SMA for three decades, Kevin Schaefer has learned to live well with his disease, not fight against it. If you’re trying to do the same, these tips might help: bit.ly/3Wo41SK
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
If SMA begins to affect muscles involved in breathing, a pulmonologist or respiratory therapist can help. Explore how: bit.ly/3wkM1Op
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
Explore how the rarity of this type of mutation can result in diagnostic delays: bit.ly/4dD71B5
#SpinalMuscularAtrophy #SMAResearch #SMANews Today #SMANews
For Mike Blakey, “maximizing what your body allows” is a big part of living well with SMA. How do you define wellness in your life? bit.ly/3UftiMc
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
Have you thought about setting specific goals for your appointments? You may find it helps you get the most out of them. bit.ly/3UBfJHl
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
