EB Awareness Week! In the simplest form here is how to explain it! Let’s help find a cure for everyone having this disease like my daughter! Being aware can make all the difference in the lives of our families. #EBsucks #EBresearch #Butterflychildren
Children with EB are often called #butterflychildren so in support we are proudly wearing butterflies on our wrists
would give anything to have my bff back who had the same skin condition as me 💔🦋 #FuckEB #ButterflyChildren #EpidermolysisBullosa #EpidermolysisBullosa Awareness
Hoy de #RutaSolidaria para hacer eco de una enfermedad desconocida, la @PielDeMariposa VAMOS!💪💪 #BancoSolidario #ButterflyChildren
Do you know #US inhumane #sanctions , targeted #Iran ’s children with special diseases, including children with #EpidermolysisBullosa !
Children with #EB are called #butterflychildren , since their skin is as fragile as wings of a butterfly. Their wounds are extremely painful.
✨Kelebek stili yüzme nedir biliyorsun. Peki asıl adı Epidermolizis Bülloza olan ve bir tedavisi olmayan KELEBEK HASTALIĞINI biliyor musun?
#Epidermolizisbülloza #Epidermolysisbullosa #kelebekhastalığı #butterflydisease #butterflychildren RaDiChal Cihan Taştan, PhD
✨Kelebek papyon nedir biliyorsun. Peki asıl adı Epidermolizis Bülloza olan ve bir tedavisi olmayan KELEBEK HASTALIĞINI biliyor musun?
#Epidermolizisbülloza #Epidermolysisbullosa #kelebekhastalığı #butterflydisease #butterflychildren
RaDiChal Cihan Taştan, PhD
What are types of Epidermolysis Bullosa?
Butterfly disease is divided into four main groups according to the level of decomposition in the skin layers and where the blisters are formed.
#epidermolysisbullosa #rarediseases #butterflychildren
RaDiChal Cihan Taştan, PhD
What are the clinical diagnosis methods of epidermolysis bullosa? 🦋
#clinicaldiagnosis #epidermolysisbullosa #butterflychildren #rarediseases
Cihan Taştan, PhD
RaDiChal
Nadir Hastalıklar
Nadir Hastalıklar Ağı
#kijktip ! Vanavond Veronica Inside 20:30 uur ; Shivan Hasan te gast over #eb #eb awarenessweek #vlinderkind #weneedacure #butterflychildren #blarenziekte
Join us as we raise awareness for EB on Dec4th! Help make a difference! #butterflychildren eventbrite.com/e/the-butterfl…
Bryan Ladd @DrinkUpYtown @vindicator #butterflychildren #FindACure #EveryLittleHelps #wemissyoumichael #covy
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debra.it #bambinifarfalla #butterflychildren
#livebetter have you heard of #butterflychildren ? Shop and cure :-o 👍ebkids.org/about-ebmrf/ #4stars #gratitude
#RutaSolidaria por una enfermedad desconocida @PielDeMariposa #BancoSolidario #butterflychildren #pieldemariposamarbella
Today is the first day of EB week, its a cause that is near and dear to me. I have been a advocate since 2013, if you have any questions message me. #EB #EB awareness #EB awarenessweek #cureeb #EB advocate #askmeabouteb #butterflychildren #wefighteb #1in20000 #raredisease #dEBra
