Thanks again Center Parcs UK for making it so easy to have a holiday with a disabled hubby. The 1st aid team went above and beyond, as did the spa team who managed to get my #mnd hubby in the water for the first time in 1 yr! He loved it - even with the rain 🤣 #nottodaymnd #ALS
Happily, despite MND entering our lives, some things will never change. Dancing with the love of my life is one of those things love you Ray❤️❤️
#loveconquersall #nottodayMND
#liveinthenow
Thank you Center Parcs UK and Aqua Sana Spa for making this possible - we both feel relaxed and refreshed 🤩 #nottodaymnd
OTD 2022 this special group of people helped me climb Snowdon to support Leeds Hospitals Charity Rob Burrow CBE Centre for #MND Appeal.
In 6 weeks we start #7mountains please support and donate 👇👇
“It means everything” 💜
donate.giveasyoulive.com/fundraising/wh…
#whatsyourmountain
#als
#nottodaymnd
#100miletrek The Trilogy, 101.4 miles. Truly fantastic and challenging walk today, it’s been a week of friendship, kindness and wonderful people. Thank you so much to everybody, it’s been very special.💜💙🧡 #whatsyourmountain #nottodaymnd Leeds Hospitals Charity MND Association Magic Mobility
Days 202-211/365
A week onboard the Disney Fantasy, visiting Mexico, Grand Cayman, Jamaica and Castaway Cay. The sunshine was needed although dissapointly their accessible service wasn't so accessible (more about that later...)
#NotTodayMND #DisneyCruise
To all our friends and connections
Wishing you a happy and healthy New Year
Keep fighting
#nottodaymnd
#100miletrek climbed High Harker Hill, Walk 7. Brutal weather at times but great fun and another 12.5 miles in the bag. We go again today back to Swaledale. Leeds Hospitals Charity MND Association #whatsyourmountain #nottodaymnd
As someone once said…”I have a cunning plan…”
We may need a wee bit of help. 🙏
Leeds Hospitals Charity Agam Jung Claire Lang Martyn Clarke Magic Mobility #whatsyourmountain #mnd #als #nottodaymnd
Leeds Hospitals Charity Rob Burrow CBE Centre for MND appeal still needs £1.2 million to make it a reality.
Please donate and RT if you can, every bit helps. 🙏
#whatsyourmountain
Leeds Rhinos Amy Garcia #nottodaymnd Geoff Burrow
I’m delighted to have been nominated for the Yorkshire Choice Awards Outstanding Courage Award. So kind & thoughtful for someone to take the time to do this for me, very much appreciate it.
Please share/vote, thank you:
yorkshirechoiceawards.co.uk
Leeds Hospitals Charity
#YCA2024
#nottodaymnd
What a way to spend my 5 yr MND anniversary watching Leeds Rhinos . A real “welcome to Headingley” start for the Dragons Catalans ending with a great win. 😂 A Guinness and a chat with my pal, the legend Jamie Peacock MBE What a great place this is!
#MND #nottodaymnd #7mountains
I’ve been looked after by some really wonderful people this last week. Exceptional care in a lovely environment. Thank Heaven for places like this and thank you to everyone St Leonards Hospice 🩵💛
Back to full strength now. 🤞🤞🧑🏻🦼
Leeds Hospitals Charity Claire Lang #nottodaymnd
The best pit crew in the world for hire if you need us Red Bull UK. #100miletrek The Trilogy, Walk 7 brings us past 80 miles with 2 walks to go. Fabulous day, fantastic friends, just walking. 💜Leeds Hospitals Charity MND Association #whatsyourmountain #nottodaymnd
Very excited about our Center Parcs UK break in 4 weeks at Woburn - need a lot of equipment and they've gone out of their way to make it possible #nottodaymnd fingers crossed the wet wheelchair will be available for our Aqua Sana Spa afternoon!
Spring is in the air. In my happy place #tranquilgarden Listening to birds singing; bees buzzing; water feature trickling; whilst smelling freshly cut grass. The best things in life are free #nottodayMND -ALS