Normal cisternography does not “rule out” a #CSFleak . 74 y-o man suffering with orthostatic headaches since 1990s. 2011: MRI showed #superficialsiderosis and LP showed “orange” CSF. Cisternogram normal. 2023: unable to walk and self-cath x6/day. Ventral leak at T1-2. #SIH

#cycling Pedal Power Cardiff #superficialsiderosis

What is #superficialsiderosis ?

#RareDisease

SSRA | Living with SS

#superficialsiderosis

#superficialsiderosis #hearingloss #teamsuperficialsiderosis

SSRA | Living with SS Thank you for sharing.

Very important that physicians know that spinal CSF leak/ #SIH is *the* major cause of infratentorial #superficialsiderosis !

The black rim is visible hemosiderin on MR imaging. #superficialsiderosis iSS type 1 classical

Lovely day cycling at Cardiff Bay Pedal Power Cardiff #accessibility #recumbenttrike #superficialsiderosis SSRA | Living with SS

Spontaneous CSF-venous fistulas cause positional headaches and even #superficialsiderosis . They also can be caused by spine surgery and should be suspected if symptoms persist in spite of apparent resolution of the #CSF leak. ⁦spinalCSFleak⁩ ⁦ #SIH pubmed.ncbi.nlm.nih.gov/36856442/

🆕️🔓Case report 🧠 Progressive superficial siderosis despite complete remission of intracranial hypotension symptoms following epidural patching.

✍️ Ian Carroll, MD MS & WouterSchievink

💚 SSRA | Living with SS #SuperficialSiderosis #spinalCSFleak
…adachejournal.onlinelibrary.wiley.com/doi/10.1111/he…

Shout out 📢 to Beacon for Rare Diseases for helping to empower patients living with, and advocating for #RareDiseases

#RareDiseaseDay #superficialsiderosis

One year check up since having my #cochlearimplant switched on. #lifechanging #superficialsiderosis SSRA | Living with SS

Brilliant to speak at the online Joint Nations #RareDisease event yesterday. So inspiring to hear all the other speakers too.
#superficialsiderosis
📸Genetic Alliance UK

💕 'Are you a caregiver or friend of someone with Superficial Siderosis? Get the guidance you need at livingwithss.com. The digital magazine of the Superficial Siderosis Research Alliance #CaregiversSupport #superficialsiderosis

Ferroptosis Frontier: In the shadows of neurological disorders lies superficial siderosis, a condition that silently wreaks havoc on the brain and spinal cord. The culprit? Iron. #neurotwitter #superficialsiderosis ssra.livingwithss.com/blog/ferroptos…

A dizzy morning, but feeling a bit better after a session Morrello Clinic #neurorehabilitation #Neurology #superficialsiderosis SSRA | Living with SS

Great session on the C-Mill this morning. #superficialsiderosis #physiotherapy Morrello Clinic

Living with Superficial Siderosis (SS) is not just a physical ordeal; it’s an emotional and psychological journey. This article explores the mental and emotional aspects of living with SS livingwithss.com/the-psychologi… #superficialsiderosis

An anniversary to remember. #cochlearimplant surgery #superficialsiderosis #Deaf SSRA | Living with SS so grateful to the lovely team at UCLH

I spy Rhys Holmes #SuperficialSiderosis listening to the Rare Disease Day webinar by Wales Gene Park