John's Campaign
@JohnCampaign
Founded 2014 & Inspired by Nicci Gerrard's father, John. For the right of people with dementia to be supported by their family carers [email protected]
ID:2907517199
http://johnscampaign.org.uk 06-12-2014 09:34:38
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Rights For Residents
Grassroot campaign fighting for rights of those in care #CareSupporter #GloriasLaw #RightsForResidents FB: https://t.co/tSUgJJM6z2
DrDr (๐)Wendy Mitchell
Sharing my journey, if anyone chooses to read it, of living as well as I can with dementia near Beverley. Follow my blog - https://t.co/FprcPcpcqr
British Geriatrics Society
The BGS is a multidisciplinary professional membership association promoting better health & care for older people. Twitter monitored weekdays 9:30am - 5:30pm.
Adam Gordon
Medical Doctor. Geriatrician. Professor of Care of Older People @medicineUoN. President @gerisoc. Research interests in care homes, med ed and sarcopenia.
Dementia UK
Dementia UK provides specialist dementia support for families through our Admiral Nurse service. We respond to messages 9-5 Monday to Friday on Twitter.
The NHS Constitution - which sets out our rights when using services - is being reviewed & updated.
We'll be calling for a new pledge recognising the vital support of family/friends: #CareSupporter .
Have your say before 25 June ๐
gov.uk/government/conโฆ
#CareRights #GloriasLaw
โThe point of being in care is to be cared for.โ Following yesterdayโs publication of the Child of the North report, today Bishop of Newcastle questioned whether the current care system was up to standard. Full speech ๐bit.ly/4b3NiZ7
Great meeting today with some of the orgs supporting our call for a right to a #CareSupporter . We heard from Lesley Goodburn on the new Care Partner Policy for health & social care. Support from relatives/friends is vital, but so is choice & flexibility about that support.
#GloriasLaw
CareRightsUK John's Campaign Rights For Residents LDEngland ARC England Bliss Baby Charity Healthwatch England Hourglass (Safer Ageing) British Geriatrics Society Great to hear from all the organisations today thanks for sharing your feedback which will shape the policy
My dad had #Parkinsonsdisease in the main, through medication, he lived a very independent life, he was always proud to support Parkinson's UK and all they do #RightsForResidents #WorldParkinsonsDay2024
Thank you so much to the amazing Lesley Goodburn for meeting with some of our members today, listening to their experiences of loved ones in care homes & hospitals & talking to us about the NHS Care Partnership policy, what it is & how it will work. On we all go! #RightsForResidents
CareRightsUK Leigh Day DoughtyStPublic Patients Association John's Campaign We know from our helpline that the management of the pandemic had a terrible impact on people's access to healthcare in care homes, for people getting care at home as well as in hospitals & other care settings. We'll make sure those experiences & voices are heard. #CareRights
Life after death makingrightsmakesense.wordpress.com/2024/04/04/lifโฆ. The best thing Iโve read about #dementia for many a long year Read, Reflect, Respond & Share Geoffrey Cox Classic Carers CareHomesQI ๐ ๐ Gina Awad BEM Natasha Wilson - Dementia Care Manager Exe Dementia AA Dementia Who! Dementia UK Thank you Neil Crowther ๐๐๐๐
Guidance out today on new fundamental standard on visiting via Care Quality Commission.
A step forward and thanks to everyone who helped us keep up the pressure on this issue, alongside John's Campaign & Rights For Residents
cqc.org.uk/guidance-proviโฆ
A thread (1/4)
Huge well done ๐ patients having their care supported by the people who know them best ๐John's Campaign โ๏ธVersha S Mahindra BEMโ๏ธ Jason Roberts Cardiff and Vale University Health Board Jane Murphy
Last week Keir Starmer said he supported #GloriasLaw . This week, we, along with our amazing ambassador Ruthie Henshall have written an open letter to him, asking that it be put in the The Labour Party manifesto - so will you Keir? #RightsForResidents
mirror.co.uk/news/politics/โฆ
Congratulations.
The first of many more Cardiff and Vale University Health Board we hope
So incredibly proud of the Elizabeth Ward team for being the 1st area to fully embed John's Campaign on our ward. Go Team! Susan Eshel ๐ Cardiff and Vale University Health Board
Crocusflower John's Campaign Prof June Andrews LLB I am sorry you had such a difficult time. My experience as a carer was very mixed & now campaign to improve support for carers. For me the problem with the ad is that the message about support for carers & anticipatory grief is lost in the stark language & makes it less effective
Joanna๐๐๐๐ท#ElectoralReform#EqualPartnersInCare John's Campaign Prof June Andrews LLB A very interesting thread .. I find it all correct, as we all travel the road of dementia path in different ways. Mine was filled with very difficult awful times, with some happy ones too.. the toll ended my marriage,husband didnโt want years spent with his life wasting away
Prof June Andrews LLB But many carers won't say that. They will grieve for the many losses on the way but they are not deaths as the person is still alive. AS brutal language caused much unecessary distress as there was no balance from a charity which is supposed to be there for people with dementia