NEW NHS Race & Health Observatory ITT: Towards better sickle cell transition services. Academics, clinicians, academic clinicians, others: Don't miss out! Deadline June 3rd nhsrho.org/news/towards-b… cc Sickle Cell Society Zainab Garba-Sani Fred Piel 💙🖤🌍 @profeshpatient

Invitation to Tender: Towards better sickle cell transition services.

This programme of work will help us identify optimal transition of care from paediatric to adult healthcare services.

Submissions by: 3 June 2024.

Further details here: nhsrho.org/news/towards-b…

The latest blog on NHS Race & Health Observatory commissioned ‘sickle cell comparative research to inform policy and practice’ work - via Fred Piel 💙🖤🌍 et al Imperial College London

The work, overseen at NHS Race & Health Observatory by Carl Reynolds, will be completed and published in autumn 2024.

Blog: blogs.imperial.ac.uk/uk-sickle/

Excellent news for our sickle cell patients , please review and share on our networks Zainab Garba-Sani Sickle Cell Society Sickle Cell Care Manchester Sickle Cell Convos Abdul Hamied Gaynor Walker NHS Race & Health Observatory Dr Habib Naqvi MBE

In their new Forefront article, Zainab Garba-Sani, Anniedi Essien, Christina Roberts, + Joseph Sïraata Yracheta, MS Pharmaceutics 🧠🫀🌎🦾 from Stanford University, Idem Spark + NativeBio Data Consortium discuss how A.C.C.E.S.S. AI can help stakeholders to engage communities, identify barriers, + uncover opportunities. bit.ly/49ToL86

Zainab Garba-Sani has led amazing work at the intersection of #antiracism and #healthequity in health care AI.

New framework from her collab group here. I learned a lot from reading it.

Commonwealth Fund The Health Foundation #Harkness

healthaffairs.org/content/forefr…

Delighted to see the NHS Race & Health Observatory @imperial Sickle Cell Comparative Research to Inform Policy project begin. Strong team and important work blogs.imperial.ac.uk/uk-sickle/ cc Sickle Cell Society Zainab Garba-Sani Dr Habib Naqvi MBE Professional Patient

It’s been such a pleasure to support NHS Race & Health Observatory since the #NoOnesListeningReport to shape research priorities for sickle cell that will enable us to better transform care and tackle health inequalities! Check out details of the latest comparative project being led by Imperial.

It was great to see Gemma Poole, Malone Mukwende, Parveen Kumar, Tamsin Holland-Brown, Zainab Garba-Sani, Angie Doshani and others share innovative and creative ideas and energy in #TacklingInequalities . Here's to the power of collaboration! 💪

Really powerful interview with Sickle Cell Society Trustee Zainab Garba-Sani with BBC News (UK) regarding a new treatment that is being developed #sicklecellwarriors
youtu.be/BOjceonSiTY?si…

📢 The Lancet Haematology Commission on sickle cell disease is being presented today at the UK Houses of Parliament #sicklecell

Ada Lovelace Institute Ada Lovelace Institute The Health Foundation thank you for inviting me to be part of this work and the panel discussion this morning! A privilege to discuss digital/data inequalities alongside the other panel members APLE Collective Zainab Garba-Sani

A great chance to connect with Zainab Garba-Sani and a catch up with Masood Ahmed APNA NHS - Asian Professionals National Alliance Conference #APNA23 #TeamAPNA

Super to meet and discuss with Zainab Garba-Sani and Wayne Farah BME Leadership Network #APNA23 #TeamAPNA APNA NHS - Asian Professionals National Alliance

Designing better acute painful sickle cell care. I'm delighted to share our plans here and announce an invitation to tender for supporting the next step in this important work. #WorldSickleCellAwarenessDay hsj.co.uk/integrated-car…

Health care for those living with #SickleCell disorder might improve through broader collection of patient experience data: tinyurl.com/3jdj7nfa University of Warwick University of Plymouth University of Leeds Simon Leigh Rebecca Baines Zainab Garba-Sani Arunangsu Chatterjee Sickle Cell Society #ERDF #PFR

Attitudes toward health data sharing among people with sickle cell, a #RareDisease exemplar (Rebecca Baines et al): institutionalrepository.aah.org/jpcrr/vol10/is… University of Plymouth University of Leeds Warwick Med School University of Warwick Simon Leigh Zainab Garba-Sani Arunangsu Chatterjee Sickle Cell Society EURORDIS-Rare Diseases Europe #ERDF #PROs

Sickle Cell Society Department of Health and Social Care NHS England is delighted to have developed and launched #CanYouTell it's Sickle Cell campaign & e-learning modules raising awareness #sicklecell crisis to ensure
#EquitableAccess
#ExcellentExperience
#OptimalOutcomes
#narrowthegap
Miss.MarComms
Zainab Garba-Sani
Ranjit Sanghera-Marwaha #BlackLivesMatter

It’s such a pleasure chairing NHS England sickle cell patient advisory group - feel hopeful, energised and inspired by the progress that is being made in this space and in record time 🙌🏾