With the dust settling on the #LocalElections now would be a great time to get in touch with new or existing councillors.

If you'd like support contacting your councillors about #MND , consider becoming a Campaigns Volunteer.

Become a campaigner here 👇
volunteering.mndassociation.org/vacancy/campai…

Big thanks to Samuel Kurtz MS for his written question on how the Welsh Government are supporting research into #MND (motor neurone disease).

You can read the full response from Cabinet Secretary for Health and Social Care Eluned Morgan here 👇

senedd.wales/media/sdjlfpkj…

Cambridgeshire! We're looking for a campaigner who is passionate about working with the #MND community to create change!

Build relationships with decision-makers and help change laws that affect people with #MND .

Discover more here ⬇️ & please share!

jobs.mndassociation.org/vacancy/campai…

Last September 🏹 My Nottingham adopted the Motor Neurone Disease Charter which seeks to positively influence the lives of those living with MND and those who care for them. I was proud to speak in support of the motion proposed and seconded by

Cambridgeshire! We're looking for a campaigner who is passionate about working with the #MND community to create change!

Build relationships with decision-makers and help change laws that affect people with #MND .

Discover more here ⬇️ & please share!

jobs.mndassociation.org/vacancy/campai…

It's election day! 🗳️

If you have #MND and you're voting in #LocalElections today, remember polling stations should be accessible & you can ask for help if you need it.

Don't forget your voter ID.

Check out other top tips below!

Today Carers UK and other organisations supporting Carers Week 2024 met with Minister for Social Care Helen Whately to mark the countdown to #CarersWeek .

We discussed Government's support for carers and called for the development of a new and ambitious National Carers Strategy.

Thanks to Justin Madders MP MP for spotlighting his recent visit to the MNDA Wirral group of the MND Association in this weeks debate on Health and Disability Reform.

Read the full debate here 👇
hansard.parliament.uk/commons/2024-0…

Kicking off in Northern Ireland, our Regional Roadshows are a great opportunity to hear more about the future direction of the Association.

We want to celebrate the important work of our members and volunteers share ideas and successes.

Find a Roadshow near you below 💙

Are you based in #London & looking for an exciting volunteering opportuning? Become a Campaigns Volunteer!

You'll have the opportunity to speak to MPs and cllrs about important issues that affect people with #MND .

Read more here 👇 & please share.

jobs.mndassociation.org/vacancy/campai…

We've joined Carers NI and nearly 30 other organisations to write to the Economy Minister Conor Murphy regarding paid carer's leave in #NorthernIreland .

Read more here ⬇️
carersuk.org/press-releases…

Want to get involved in #MND #ALS research? 🔬

On our website you can get involved in research studies which are:

💊 testing new potential treatments
🩺 aiming to improve diagnosis and care
🧪 trying to understand the causes of MND

More info: mndassociation.org/research/get-i…

To what extent is your quality of life affected by your neurological condition?

Having #MND affects all aspects of a person's life.

Share your own reality in order to help bring change in the current system.

Respond to the The Neurological Alliance survey here ⬇️

neurolifenow.typeform.com/Mar-Apr24?utm_…

Thanks to Chair of the APPG on rare conditions, Liz Twist MP for meeting with us to discuss the recent decision taken by NICE regarding tofersen.

We highlighted the precedent it could set for future precision medicines – both in treatment for #MND and other rare diseases.

You have until 5pm today to apply for free voter ID!

If you would like to vote in elections taking place on 2 May and don't have a valid form of photo ID check out how to get your free voter ID below.

electoralcommission.org.uk/voting-and-ele…

Please share! 🗳️

Big thanks to Marion Fellows MP for highlighting research from the #SupportMNDCarers campaign in the debate on Carer's Allowance yesterday.

We need the next govt to reform Carer’s Allowance & uplift the rate to a level that reflects the value unpaid #MND carers offer.

Great to see the #ActToAdapt campaign, including work with Hull City Council highlighted in the MND Association Impact Report.

Everyone with #MND should be able to live in an accessible home, without delays or high costs.

Read the full 2023 annual report here👇
mndassociation.org/about-us/who-w…

We'd like to see an urgent review of the cost threshold NICE uses to judge whether new drugs should be approved for the NHS.

It’s appalling that people with MND face being denied what could be a life-changing treatment because of the outdated systems for approving medicine.

Tofersen is a proven, effective treatment for people with SOD1 #MND .

The NICE decision sets a worrying example for future precision medicines entering the UK market – both for MND and other rare diseases.

Read more in The The Guardian here ⬇️

theguardian.com/society/2024/a…

Making my way to the House of Parliament. Full video available on YouTube. ⬇️

youtu.be/OyQYIKg-JBc?si…

#housesofparliament #london #bournemouth #train #mnd #motorneuronedisease #als