Pleased to meet the MND Association at #conf2023 with LGA Independent Group colleague sarah rouse. #supportMNDCarers

Big thanks to Marion Fellows MP for highlighting research from the #SupportMNDCarers campaign in the debate on Carer's Allowance yesterday.

We need the next govt to reform Carer’s Allowance & uplift the rate to a level that reflects the value unpaid #MND carers offer.

Join me & ask your MP to back the new #SupportMNDCarers campaign.

We need as many MPs as possible to write to Steve Barclay so all #MND carers have access to the support they need 👇 ecampaigns.mndassociation.org/page/109974/ac…

Just 25% of carers of people with MND have had a carer's assessment.

I met MND Campaigns this week in Parliament to learn more about their incredibly important campaign to get the Government to increase access to carer's assessments. You have my full support. #SupportMNDCarers

Are you entitled to a carer's assessment?
Help us raise awareness of carer's assessments by sharing this infographic! #SupportMNDCarers .

More information about support for carers of people with #MND here:
MNDAssociation.org/CaringSupport

Big thank you to Ben Lake AS/MP for speaking to us about #MND carers at the #CarersWeek event today.

Ben spoke to Jessica who shared her experience being an unpaid carer for her husband with #MND .

Together we must #SupportMNDCarers .

Thousands of unpaid carers are being forced to repay vast sums due to minor breaches of the Carer's Allowance rules.

The #SupportMNDCarers campaign has long been calling for urgent reform of this benefit, particularly removing the limited eligibility rules.

Could you help a carer of somebody with #MND get the support they need?

Help us #SupportMNDCarers by sharing our carer's assessment infographic below!

If you're a carer, you can find more info here:
MNDAssociation.org/CaringSupport

Are you entitled to a carer's assessment?

Help us raise awareness of carer's assessments by sharing this infographic! Please retweet to #SupportMNDCarers .

More information about support for carers of people with #MND here:
MNDAssociation.org/CaringSupport

7 in 10 local authorities don't provide routine reassessment for people caring for those with severe progressive diseases like #MND .

We need your local authority to #SupportMNDCarers .

Write to your councillors today! Follow this link 📢
mndassociation.org/get-involved/c…

Hello #mnd campaigners! Please take a minute to fill in a quick survey on the #SupportMNDCarers campaign.
smartsurvey.co.uk/s/3NPYRI/
We'd really like to hear what you think of the campaign, your participation so far, and what support and resources you've found most helpful. Thanks!

Today we've been in Westminster to meet Ian Byrne MP to discuss issues affecting people with #MND and their carers.

We spoke about the #SupportMNDCarers and #ThroughTheRoof campaigns.

Thank you for your continued support, lan Byrne MP.

Just finished the beautifully written ‘Who Cares’ by Emily Kenway.

It examines the care crises w powerful stories, including Katy Styles’s, & reimagines what the future of care could look like - if we’re brave enough.

Food for thought for the #SupportMNDCarers campaign.

Pssst - don't tell anyone (actually: do tell everyone) but the resources supporting you to meet your MP to discuss #SupportMNDCarers are now live!

mndassociation.org/support-mnd-ca…

Today is #CarersRightsDay .

Carer’s assessments are a right & can be the first step to vital support.

MND Campaigns/MND Association have just launched a report on the state of carer's assessments as part of their #SupportMNDCarers campaign.

Read more:

mndassociation.org/get-involved/c…

Big thanks to MND Campaigns volunteers who dialed in last night to discuss meeting MPs for the #SupportMNDCarers campaign.

If anyone couldn't make it but wants a chat about meeting their MP, drop me a line!

Resources here: mndassociation.org/support-mnd-ca…

#MND

Please ask your MP to #SupportMNDCarers

ecampaigns.mndassociation.org/page/117925/ac…

Join me & ask your MP to back the new #SupportMNDCarers campaign.

We need as many MPs as possible to write to Steve Barclay so all #MND carers have access to the support they need 👇 ecampaigns.mndassociation.org/page/109974/ac…

Important questions for the Chancellor on the level of Carers Allowance. At it’s current rate it is not enough to #SupportMNDCarers who care for more than 35 hours a week and cannot work as a result.
They need real recognition for the hard work they do for loved ones with #MND .