ich liege hier seit einigen jahren.

#jederTagMECFS #MECFS #MEAwarenessHour

Yeah!
Der neue Ärzti-Flyer zu #MEcfs ist fertig!

PEM wird erklärt und von Pathomechanismen abgeleitet.

Wissenschaftlich fundiert:
Basis-Infos
Links zu weiteren Infos,
wichtigen Veröffentlichungen,
kostenlosen Fortbildungen
und den Quellen

#MEAwarenessHour
1/4

Finally, we spoke for an hour today with the father of a young woman called Carla: currently living with #SevereME that an NHS hospital is ignoring. She is extremely unwell repeatedly losing consciousness, unable to eat, yet the hospital is refusing to follow #MEAwarenessHour 1/2

Yet another young woman being mistreated in an NHS hospital. 😭💔

#SevereME #MEAwarenessHour

#MEAwarenessHour where do you sit on this excellently reasoned scale. It feels like the most accurate of these I’ve ever seen. #MECFS #pwME

In case you're searching for the link as I did, here it is

organise.network/actions/petiti…

#MEawarenessHour
#MECFS #MillionsMissing

IMPORTANT #MEAwarenessHour make your plans now. Gear up #pwME #MECFS

The recent European survey of #MECFS is a disheartening testimony of unmet needs: The average time to diagnosis is 7 years. 75% of patients receive little or no help. More than 72% are mostly homebound, or worse. When will #pwME be heard? #MEAwarenessHour

europeanmealliance.org/documents/emea…

We want to support chronically ill & disabled people with this. We'll be running some JOURNALISM TRAINING SESSIONS via Zoom this month, to assist people in writing articles & pitching #MEAwarenessHour . If you want to register your interest, email hello(at)thechroniccollaboration.com

#MEawarenessHour
#BringMillieHome
#DontLetMEDie
#ExposeMEnow

Send your photos to @TheChronicCollaboration for #MEawarenessDay protest in #London UK 2024...👇✊️

It’s #MEawarenesshour . I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an objective diagnostic test for detailed clinical trials.

Announcement from .@TheChronicCollaboration...!!!

#MEawarenessHour
#BringMillieHome
#DontLetMEDie
#ExposeMEnow ...👇✊️

💔

M.E community 👇

#SevereME #MEAwarenessHour

Julie Houston @TheChronicCollaboration #MEAwarenessHour

Any one in touch with Karen who can pass on Stacey Poole 💙 's details r.e. doing a story on ITV News Meridian ??

Alisontomyradio Naomi Harvey PhD #WearAMask ME Foggy Dog 💙 Crafty Miss Jo Laura Elliott Hollie-Anne Brooks 🎀✨🩼🌈⚽️ yes I'm just tagging some random MEeps who might know/rt

#MEawarenessHour
#BringMillieHome
#DontLetMEDie
#ExposeMEnow
#DisabilityTwitter
#pwME #pwLC

Journalism training sessions by @TheChronicCollaboration...👇✊️

The forum committee has written to the ME Association to detail concerns about their project developing a new clinical assessment toolkit using PROMs (patient reported outcome measures) intended for use in NHS #MECFS specialist services.

#MEAwarenessHour

s4me.info/threads/open-l…

The amazing Hannah Sharland who livestreamed #BringMillieHome #DontLetMEDie protest also wrote this week on European ME Alliance research showing 3/4 of 11,000 pwME across EUROPE had 'little or no healthcare support' #MEAwarenessHour . This context is crucial. Read more:
thecanary.co/global/world-a…

#MEawarenessHour
#BringMillieHome
#DontLetMEDie
#ExposeMEnow ...👇