DON'T. LOOK. AWAY. #SaveCarlasLife #MEAwarenessHour

Please meet Pierre, Carla's father. We cannot overstate how distraught he is by what is happening to his daughter. However, he wanted to speak to everyone directly. Please watch & share widely. She is running out of time 💚

Revolutionärer 1. Mai

#Antifa #GutesLebenfüralle !
Seid solidarisch mit Behinderten und chronisch Kranken!

Solidarischer Infektionsschutz:
Es bleibt gesund,wer gut vermummt!

Ladet ein zu den @LiegendDemos am 11. Mai:
Menschenrechte auch für Menschen mit #MEcfs
#MEawarenessHour

an schlechten tagen vertrage ich kein licht und keine geräusche.

#jederTagMECFS #MECFS #LongCovid #MEAwarenessHour

Several studies show that #MECFS is one of the most debilitating chronic illnesses. Many patients have symptoms around the clock and have lost many of the things that really matter: social network, career, leisure activities etc. Your support may mean the world. #MEAwarenessHour

Patients with #MECFS cannot reproduce their parameters in repeated CPET tests, but did you know that there is other objective evidence for post-exertional malaise? The gene expression, for example, shows a significantly different response than in controls. #MEAwarenessHour

Can you imagine not being able to leave your daughter alone in hospital, for fear of the staff harming her?

#SaveCarlasLife
#MEAwarenessHour

irgendetwas stimmt mit der energieproduktion in den mitochondrien nicht...

#jederTagMECFS #MECFS #LongCovid #MEAwarenessHour

#SaveCarlasLife #MEAwarenessHour
#ExposeMENow

#MEAwarenessHour

Moderates #MECFS ist, wenn du für eine #LiegendDemo rund 7,5 Std. (also nicht einmal einen kompletten Arbeitstag lang) außer Haus warst und dich auch 12 Tage später immer noch nicht vollständig davon erholt hast. 😖

#PEM #Fibromyalgie #SFN #Schietwetter

On Monday, another beloved patient, Loes Talma, passed away. Her request for euthanasia was granted and she left this world after a long sick bed. She'll be sorely missed. #MEawarenessHour

🕯️ …centraal-wordpress-com.translate.goog/2024/04/23/loe…
🕯️ youtube.com/watch?v=HtnZS7… (please switch English subtitles on)

OUR WEBSITE IS LIVE

#MEAwarenessHour #TheChronicCollaboration

We hope this moment will be the start of a sea change for #ChronicIllness communities. We're determined it will be. Please have a look at the website, support it if you can, & do share.
thechroniccollaboration.com

#MEawarenesshour

#SaveCarlasLife
ITV News Channel 4 News
BBC News (UK) Channel 5 News

#ExposeMENow
#MEAwarenessHour

On bad days, I can't stand light and sound. #MEawarenessHour

TONIGHT 8PM:

We're pleased to say we're launching our website during #MEAwarenessHour TONIGHT at 8pm. This is a project that everyone can be involved in - so we hope you'll be online later today for the launch #MEcfs #EDSAwarenessMonth #SaveCarlasLife
thechroniccollaboration.com

Auch lustig, Wessely wusste schon 2001, dass kognitive Verhaltenstherapie bei ME/CFS nicht kurativ ist, was die PACE Studie dann ja auch gezeigt hat. Dennoch wurde und wird es bis heute den Betroffenen vorgehalten, obwohl die genau wissen, dass es eine Lüge ist.
#MEAwarenessHour

#ME AwarenessHour

Don't forget #ME

#MECFS
#ExposeMENow #DontLetMEDie #InstitutionalisedDiscrimination
#SaveCarlasLife
#KarenGordon
#BringMillieHome
#TakeDownThePACEtrial
#MEAwarenessHour

Latest Update: #SaveCarlasLife
#MEAwarenessHour