Siku ya tareh 29 February ni siku maalumu ya kuadhimisha magonjwa adimu duniani(Magonjwa ambayo humpata mtoto 1 kati ya watoto 2000 ) jioni ya leo tuliungana pamoja na madaktari mbalimbali akiwemo Mtaalamu Francis Furia katika kuadhimisha siku hii muhimu #RareDiseaseDay2024 .
Me and my stripey socks are heading to Westminster to celebrate #RareDiseaseDay2024 with Sophie Sainty to represent Unique and all those affected by rare conditions. Genetic Alliance UK Medics4RareDiseases
Remember today is:
Rare Disease Day 🩷
This day needs to come around more than every 4 years. Too many suffering, too little research.
Let's hope new technology offers hope for many suffering.
#RareDisease Day2024
#RareDisease #RareDisease Day
To the courageous souls battling rare diseases
Remember that you are not defined by your illness. Your worth and identity go far beyond your diagnosis,
Your courage and strength are an inspiration. Keep shining brightly, for your resilience knows no bounds.
#RareDiseaseDay2024
#RareDiseaseDay 2024
Meet my fabulous 3 girls.
Olivia 22.Sophie 20 & Evie 15.🥰
They’re diagnosed with SBIDDS. A very rare genetic condition.
They’re also utterly fabulous😍
There’s always smiles despite the many complex medical & life challenges they face.☺️
#RareDiseaseDay
“Remembering the strength and resilience of those facing rare diseases today and everyday.. Muhimbili University Ali Kimara Rare Disease Foundation (AKRDF) Lupus Tanzania TAMSA MUHAS
#RareDiseaseDay
#RareDiseaseDay 2024
Namshukuru Ali Kimara, mtoto anayeishi na #UgonjwaAdimu kwa kunifundisha somo la matumaini. Sababu ya Ali nilijiunga na harakati za kupigania maslahi ya wanaoishi na magonjwa adimu kupitia taasisi ya Ali Kimara Rare Disease Foundation (AKRDF).
Leo tunapoadhimisha #RareDiseaseDay2024 tunajivunia pamoja na Ali…
👆PLEASE READ ABOVE 🧵
Smiling through tears on this #RareDiseaseDay2024 , for I’m sick…
I hope to advocate as much as I can for those fighting far worse battles than me.
A heart~RT~comment~reply~FB~for you asap.
Thanks for tolerance🕊️
Love,
A🪶
👇
youtu.be/qz1f4mNHMfQ?si…
Today is World Rare Disease Day, so we’re throwing it back to this video from 3 years ago. ⏪
Peter Dankelson 🎸
#GoldenharSyndrome #Microtia #RareDisease Day2024 #RareDisease
👆PLEASE READ ABOVE🫶
#Anemoia is a survival mechanism for millions due to the #inequity of #OrphanDrugPrices for millions suffering on this #RareDiseaseDay2024 😞
On #LeapDay & EVERYDAY:
#BeBrave & #ShowYourRare 🧬
#YouMatter 🫂
With hope,
Aspen🕊️
👇
youtu.be/t9fMNNsdPjU?si…
Today is #RareDiseaseDay2024 and I’m celebrating all those who are living their best lives each day!
My Beautiful Granddaughter
everythingeviewinter Evie's wearing her stripes today in support of #rarediseaseday2024 *9
Did you know that there are 3.5 million people in the UK living with a rare condition? And that 1 in 17 people will be affected by a rare condition at some point…
Hoy es el #RareDiseaseDay2024
👉Hay más de 300M personas afectas por alguna enfermedad minoritaria en el mundo
🌟En @reumaleon nos unimos para dar más visibilidad y atención a los pacientes con enfermedades reumáticas minoritarias
#RareButNotAlone
🌈 Un año más acompañando a las familias que visibilizan las #enfermedadespocofrecuentes e insistiendo ante los decisores de los sistemas de salud pública y privada para facilitar trámites y tratamientos #epof #RareDisease #RareDisease Day #RareDisease Day2024 #29deFebrero
It’s #RareDiseaseDay2024 This is my son Cammie. He has a rare disease, which is potentially life limiting. He’s intelligent, he works hard, he has a fab job and a superb work ethic. He doesn’t moan, he gets up and gets on! Some illnesses are tough but far from obvious. ❤️❤️❤️
Mapping Rare is going live! For #RareDiseaseDay2024 , visit our website to learn about the the achievements of our rare disease community: rarediseasesinternational.org/mappingrare/
Great team at @CBMSO_CSIC_UAM and UAM Autónoma Madrid working in #RareDiseases !!!
#ShareYourColours #RareDiseaseDay2024
It's #RareDiseaseDay2024 💚
Here is our team wearing bright and cheerful outfits to spread the joy of the #ShareYourColours campaign!
Please click this link to find out more information on Rare Disease Day: rarediseaseday.org
I have 3 genetic conditions: Common Variable Immune Deficiency (CVID), Autoimmune Polyendocrinopathy Syndrome Type 1 (APS1), hemochromatosis. Doctors are taught to 'think horses' when a patient presents with symptoms. I had to fight for 'think zebra' answers.
#RareDiseaseDay2024
