Naibu Makamu Mkuu wa Chuo Kikuu cha University of Dar es Salaam, Prof. Bernadeta Killian na ujumbe wake, wamekutana na watumishi wa Chuo Kikuu cha Dar es Salaam walioko masomoni nchini Korea katika Ubalozi wa Tanzania Embassy, Korea ( 주한탄자니아대사관) jana.

Ubalozi ulifarijika kuwaunganisha na kuwa sehemu ya mkutano

Tafiti ndio chachu ya ujumuishwaji wa waishio na #magonjwaadimu nchini,
Kwa waathirika na familia zao, hamkujichagua bali mmechaguliwa.
#2024RareDiseaseDayTz
Togolani Mavura
Francis Furia
Muhimbili University
Rare Disease Day
Ali Kimara Rare Disease Foundation (AKRDF)
Wizara ya Afya Tanzania 🇹🇿
Wizara ya Elimu Tanzania
Aysha Mbarak Al-Alawy

Kwa waathirika wa #magonjwaadimu na familia zao, hii ni siku adhimu. Kumbukeni, mmepata majaribu haya, lakini hamkujichagulia, mmechaguliwa. Mmekuwa mashujaa katika safari hii. Nawaombea wale wote walioondokewa na wapendwa wao kutokana na magonjwa adimu.

Tunaendelea kutoa elimu juu ya #MagonjwaAdimu

'Sisi kama ulimwengu, tunaona ni adimu, lakini kwa wanafamilia wenye mtoto mwenye ugonjwa adimu, wanaona ni ulimwengu mzima uko pale .....' Prof. Manji, MUHAS.

Tazama zaidi: youtu.be/Xgakm6jd4gM?si…

#RareDiseases #THGO #MUHAS

Taasisi ya AKRDF & MUHAS Muhimbili University tumeungana kuadhimisha Siku ya Magonjwa Adimu tarehe 29 Februari, saa 1 jioni. Taa za matumaini ziliwaka katika jengo la MUHAS, ikiwa ni ishara ya dhamira yetu ya kuendelea kushirikiana kuleta mwangaza kwenye utafiti wa magonjwa adimu.

Namshukuru Ali Kimara, mtoto anayeishi na #UgonjwaAdimu kwa kunifundisha somo la matumaini. Sababu ya Ali nilijiunga na harakati za kupigania maslahi ya wanaoishi na magonjwa adimu kupitia taasisi ya Ali Kimara Rare Disease Foundation (AKRDF).

Leo tunapoadhimisha #RareDiseaseDay2024 tunajivunia pamoja na Ali

We have to be aware of this🙌💯

#RareDiseaseDay
Ali Kimara Rare Disease Foundation (AKRDF)

Rare Disease Day is an important opportunity to raise awareness about rare diseases and their impact on patients' lives #LightUpForRare

This calls for an urgent need to utilise different platforms and forums such as the commemoration of rare diseases day to engage different stakeholders including the government to raise awareness. #ElimikaWikiendi #RareDiseaseDay #RareDiseaseDay 2023

In order to improve the quality of lives of children/individuals with #RareDisease in Tanzania, increased public awareness and engagement are urgently needed together with appropriate policies, and treatment and supportive care systems.

In Tanzania, management and care of patients with #RareDisease result in unbearable financial burden particularly to the families and close relatives. It has been noted that the health insurance schemes currently operating in Tanzania do not or partially support patients with RDs

Currently, there are no established therapies for most of the RDs in Tanzania and for those with treatment, it is normally obtained from other countries, and it is generally expensive and out of reach for many patients. #RareDiseaseDay #ElimikaWikiendi Rare Disease Day

In the first picture from lef are Ms. Arafa Said of SCPCT, Ms. Fidelis Usio of Epilepsy organization of Tanzania, Dr. Daima Bukini, en expert of ELSI and Ms. Hajrrath Mohammed of Lupus Awareness and Support Foundation (LASF)

2nd THGO CONFERENCE

Dr. Daima Bukini led a panel discussion with #RareDiseases warriors who shared their experiences accessing medical care in #Tanzania .

#THGO2023
#HumanGenetics #HumanGenetics Tz #THGO2ndConference

Ahsante sana.
Elizabeth Achilles Ndyalusa

Ali Kimara Rare Disease Foundation (AKRDF) Holy Big up kido

Kongole na asante ziwafikie wadau wote mliotenga muda wenu kwa ajili ya kushiriki #ElimikaWikiendi ya leo kikamilifu.

Tunakutakia wikiendi mujarabu wewe na familia yako!

#ElimikaWikiendi Ali Kimara Rare Disease Foundation (AKRDF) Hiii nzuri mno, niko hapa nijifunze kutoka kwa Ali

Ali Kimara Rare Disease Foundation (AKRDF) #ElimikaWikiendi Mungu azidi kumtunza na kumrejeshea Afya njema,Naamini ipo siku atasimama na kusimulia matendo makuu ya Mungu

Ungana na Ali Kimara Rare Disease Foundation (AKRDF) kesho kwenye #ElimikaWikiendi kujua ujumuishwaji wa watu wa magonjwa adimu katika afya na elimu