Today is SCN8A Awareness Day! At n-Lorem we celebrate our SCN8A superheroes everyday. International SCN8A Alliance #nlorem #mynanorarestory #supportnanorare #SCN8A #SCN8A Aawareness
Target ALS is committed to finding treatments for all forms of ALS.
We are proud of our collaboration with n-Lorem Foundation Foundation to find treatments for nano-rare forms of ALS.
#collaboration #nlorem #nanorare #EndALS #ALSresearch
@B0kiNFT Mona Lisa @iszsrn @udongyue3 @aldeboi19 @opketmon @unami_eth @gorfirst @0rdmarlborough ayie daniel lavado @amboozlezy @arthxnft @uxekas @rutale91o_nft sophon @ujikfamily Pierre Toussaint @ayshifter1 minwoo Lee @hangbaoNFT @reeniedoteth @aniel_ldn_nft @ragosh672 Nadia Medina
CHASERR lncRNA Dad Vijay Ganesh Coalition to Cure CHD2 Anne O'Donnell-Luria Gemma Carvill, PhD Igor Ulitsky ๐ UDN Broad Institute UDN PEER GREGoR Consortium Recommend to nominate this patient to #nlorem to normalize #CHD2 levels with #aso . Pls DM me if interested.
Information about the application process can be found here: linktr.ee/nlorem
#rareliverdisease #rarelivermutation #nanorare liverdisease #nanorare livermutation #nanorare #nanorare disease #raremutation #nlorem
Today is KIF1A Awareness Day! At n-Lorem we celebrate our KIF1A superheroes everyday. KIF1A.ORG #nlorem #mynanorarestory #supportnanorare #KIF1A #KIF1A awareness
@Vanlorem @SeducionGitana Marcos Oliveira ๐ ๐ง๐ท๐ต๐น Regina Zรฉ Amรฉrico AZUL NiceVeloso Pittolzinha @Dora65691792 @SilvaGsme #Chapeleira๐ค๐๐ฉโก #LutoPeloBrasil Vera Lรบcia de Campos Rob MScholz Profe Borto - #PensarNaoDoi - Escritor-Articulista Zeno ๐ง๐ท๐๐ง๐ท ๐นLara Croft๐น ๐ช๐๐๐๐๐๐๐ ๐น๐๐๐๐๐๐ #VGSDVโค๏ธ๐คแถสณแถ @YaraTorres2012 Monica Neves gelci carlos Abreu ยฐโขโ ีผวศถสโ โขยฐ โ๏ธ #๐ต๐น๐๐ท๐ #๐ฑ๐ผ๐บ๐ซ๐ฝ#๐ซ๐บ๐บ๐ซ๐ฝ @Poeta_Eumacle @JuanSGE Agradeรงo minha amiga V@nLorem
Eric Vallabh Minikel Daniel MacArthur Erika Check Hayden Tim Yu Thanks for alerting the community. #nlorem is taking this issue seriously and taking with the #fda to ensure future safety. #nlorem thinks the issue is largely preventable by following industry-standard guidelines. Drug design should be left to professionals.
@Vanlorem @SilvaGsme Pittolzinha Rob MScholz Marcos Oliveira ๐ ๐ง๐ท๐ต๐น Zรฉ Amรฉrico AZUL NiceVeloso JR.Amorim. Regina Zeno ๐ง๐ท๐๐ง๐ท ๐นLara Croft๐น @Dora65691792 #Chapeleira๐ค๐๐ฉโก #LutoPeloBrasil Vera Lรบcia de Campos Profe Borto - #PensarNaoDoi - Escritor-Articulista ๐ช๐๐๐๐๐๐๐ ๐น๐๐๐๐๐๐ #VGSDVโค๏ธ๐คแถสณแถ @YaraTorres2012 @SeducionGitana Monica Neves gelci carlos Abreu ยฐโขโ
ีผวศถสโ
โขยฐ โ๏ธ #๐ต๐น๐๐ท๐ #๐ฑ๐ผ๐บ๐ซ๐ฝ#๐ซ๐บ๐บ๐ซ๐ฝ SubeidaHexa๐๐ฆ๐ @Poeta_Eumacle @JuanSGE Bom dia minha amiga V@nlorem
Bom dia para todos
Ethan Perlstein Erika Check Hayden Eric Vallabh Minikel Daniel MacArthur Tim Yu Excellent point, Ethan. ASOs seem simple solutions for genetic diseases. But 30+ year of industry experience canโt be discounted. Patients are free to make decisions, but such leverage best available in partnership. The alternative is potentially life-threatening risk. #nlorem
How rare are N-of-1 trials with personalized ASOs?
We all know of Mila (Mila's Miracle) and maybe 2-3 more, but real numbers are much higher! Joseph G. Gleeson says just at nLorem they have helped 50 patients get a personalized ASO.
Look forward to seeing more access! ๐งฌโก๏ธ๐ง
In this clip, I asked Stanley Crooke, founder of Ionis Pharmaceuticals, Inc. and nLorem, what advice he would give to his younger self if he could.
youtu.be/T4lAYpgMHH0
#founder #ceo #ionispharmaceutical #nlorem #scientist
#entrepreneur #entrepreneuership #advice #younger
Season 1, Episode 26: Had the pleasure to sit down with Stanley Crooke, founder and former CEO of Ionis, Inc. for over 30 years, and now the founder and CEO of nLorem.
youtu.be/YSQeCzdrjes
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#chiefexecutiveofficer #ceo #founder #ionispharmaceutical
#nlorem
Ethan Perlstein Sanath Ramesh @BosBizAllison Boston Business Journal Vijay Sapps Brian Wallach Amber Freed Rashmi Sinha Laura Project 8p Pooled high net worth? What about non-profit anti-sense Nadia Medina model?