Thank you MIcrobiotaMi for highlighting our review article on Gut #Microbiota -Host Interactions in #primaryimmunodeficiencies
IPOPI is glad to announce the publication of a new series of 3 leaflets about #primaryimmunodeficiencies : PIDs and #Allergies , PIDs and #Infections and PIDs and #PsychologicalManagement - ebook and PDF versions available online
bit.ly/IPOPIleaflets17
Access to healthcare for someone with PID, involves many Clinicians, Specialists and their teams #MyPhysicianAndI #IPOPI #PrimaryImmunodeficiencies #Immunology #Healthcare
Surprise award for excellent research to Zuzana from Nature Immunology ´s Laurie Dempsey for DCs tolerogenic failure in STAT1 GOF 👏we´re very proud of you! #innateimmunity #primaryimmunodeficiencies Zuzana Parackova 2. lékařská fakulta Univerzity Karlovy instagram.com/p/CtFWVDeLFED/…
U.S. Embassy Nairobi It is also World Primary Immunodeficiency Week- a global campaign to raise awareness and improve diagnosis of primary (genetic) immunodeficiencies. #WorldPIWeek #PatientCenteredCare #primaryimmunodeficiencies
Our paper is out in Blood Journal. Great collaboration IIT Prof Emma Morris 💙 lab and Paris Necker led by M Cheminant. We compare #alloHSCT with conservative managmt for adults with #primaryimmunodeficiencies and show alloHSCT prevents progressive morbidity. ashpublications.org/blood/article-…
Interested in #XIAP #HLH #PID #PrimaryImmunoDeficiencies #RareDiseases ?
Read this new publication from ESID #ESIDregistry led by Siobhan Burns along with #RebeccaMarshMD edito pubmed.ncbi.nlm.nih.gov/35716950/
Important for patients (from Dx to #LongTermOurcomes ) IPOPI
@ldnotar is captivating the audience of #IPIC5 with a FANTASTIC talk taking us full (virtuous) circle from clinical description of #primaryimmunodeficiencies #IEIs to molecular definition and precise medicine! What a ride! Thank you Gigi! Nizar Mahlaoui M.D., M.P.H., Ph.D. Martine Pergent
Groups like SCID Angels For Life Foundation, IPOPI and the Jeffrey Modell Foundation (@info4PI) are driving forward valuable initiatives to support those with #primaryimmunodeficiencies . More information on these groups can be found on their websites. #WorldPIWeek
Outstanding lecture from Luigi Daniele Notarangelo on #PrecisionMedicine for #primaryimmunodeficiencies #PAAM2019
RT to TEACH!
FACT: #PrimaryImmunodeficiencies are a group of 400+ disorders of the #immunesystem with varying degrees of severity.
#invisibleillness awareness #chronicillness awareness #invisibleillness #chronicillness #invisibleillness warrior #chronicillness warrior #spoonielife
#RareDisease patients share their advice for navigating relationships and finding community.
#Sponsored by IpsenUS bit.ly/3LdEvIJ
Patients with #PrimaryImmunodeficiencies in the 🇪🇺 face a critical safety concern: the need to secure a stable and adequate supply of immunoglobulins.
Addressing this issue is of utmost importance to ensure the health of these vulnerable individuals. 🤒
#SoHORegulation
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The #WorldPIWeek theme for 2023 is 'Turning real-world data into knowledge for better PID care.' 📈
Join us in improving access to diagnosis, treatment and care for patients with primary immunodeficiency through collaborative & real-world data use.
worldpiweek.org
Big shout out to #PID patients in Africa!
This #WPIW IPOPI is launching an awareness video about #primaryimmunodeficiencies in Africa.
Testing, diagnosing and treating PIDs is possible.
Watch it on tv.ipopi.org and RT Tandakha Dieye PiNSA - Primary Immunodeficiency Network SA
Such an important theme, especially for patients with #rarediseases such as #primaryimmunodeficiencies .🔬
All together, we are very many! #Primaryimmunodeficiencies #Autoinflammatorydisorders #Autoimmunediseases #Paediatricrheumaticdiseases
