MotorNeuroneDisease(@MNDPatients) 's Twitter Profileg
MotorNeuroneDisease

@MNDPatients

Set up to help, advise & support people affected by #MND #ALS Ideas & suggestions welcome from everyone #NoCause #NoCure

ID:4861327205

calendar_today29-01-2016 19:46:09

19,6K Tweets

3,5K Followers

3,2K Following

Euan's Guide(@EuansGuide) 's Twitter Profile Photo

We're thrilled to learn this morning that Euan's Guide and Euan have been shortlisted for The Shaw Trust's Disability Power 100. 😃

We're thrilled to learn this morning that Euan's Guide and Euan have been shortlisted for The Shaw Trust's Disability Power 100. 😃 #DisabilityPower100
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IMNDA(@IMNDA) 's Twitter Profile Photo

IMNDA Annual Memorial Service remembering those we have lost to MND will be streamed live youtube.com/@MNDireland on Sat 11th May at 11.45am & service will commence at 12. May Memory Packs available at imnda.ie/shop

@IMNDA Annual Memorial Service remembering those we have lost to MND will be streamed live youtube.com/@MNDireland on Sat 11th May at 11.45am & service will commence at 12. May Memory Packs available at imnda.ie/shop
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MND Education(@mndeducation) 's Twitter Profile Photo

This week is Dying Matters Awareness Week! This year's theme is - a crucial topic in . Take a look at our Advance Care Planning booklet, with helpful guidance to support HSCPs to help people plan for the future. bit.ly/ACP-MND

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MND Education(@mndeducation) 's Twitter Profile Photo

Posture management & orthotics help with many symptoms of , improve quality of life, and support activities of daily living, mobility and comfort. Join us at one of our workshops - 18/6 Southampton or 19/11 Salford.

Find out more and book your place. mndassociation.org/education-even…

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West Sussex North(@MNDwestsussex) 's Twitter Profile Photo

GivingLottery results are in!

Remember to check your email to see if you've won!

If you haven't signed up yet visit our page - givinglottery.org.uk/support/mnda-w…

Have a great weekend everyone!

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Patients United2EndMND(@united2endmnd) 's Twitter Profile Photo

Please add your signature to letter to Mirocals Consortium members from our high profile patient colleagues here united2endmnd.org/2024/04/30/wou… Clear answers should help speed access to life prolonging drug for MotorNeuroneDisease if +ve provisional results are confirmed. Please share.

Please add your signature to letter to Mirocals Consortium members from our high profile patient colleagues here united2endmnd.org/2024/04/30/wou… Clear answers should help speed access to life prolonging drug for @MNDPatients if +ve provisional results are confirmed. Please share.
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David Setters(@dsetters) 's Twitter Profile Photo

Pls add your support to Darby Rimmer MND Foundation Rob Burrow CBE Geoff Burrow Ed Slater letter to Consortium members. Clear answers to questions SHOULD help speed access to life prolonging treatment if +ve top line results are confirmed united2endmnd.org/2024/04/30/wou… MotorNeuroneDisease

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Carers Week(@carersweek) 's Twitter Profile Photo

Today Carers UK and other organisations supporting Carers Week 2024 met with Minister for Social Care Helen Whately to mark the countdown to .

We discussed Government's support for carers and called for the development of a new and ambitious National Carers Strategy.

Today @CarersUK and other organisations supporting Carers Week 2024 met with Minister for Social Care @Helen_Whately to mark the countdown to #CarersWeek. We discussed Government's support for carers and called for the development of a new and ambitious National Carers Strategy.
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Ed Slater(@edslater) 's Twitter Profile Photo

Please take a look at this open letter addressing the very important issue regarding the lack of information around the results and data from the Mirocals trial. The reason it is so important is that we are being denied access to a potentially effective treatment, Interleukin 2.…

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David Setters(@dsetters) 's Twitter Profile Photo

Patients United2EndMND need clarity on why/how were chosen. Can they deliver new drug as quickly as low dose ? If not, arrangements for alternative supplier are needed & with a contract that will get drug to MotorNeuroneDisease ASAP West Sussex North MNDA East Surrey MNDA-EastKent

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Lord Mayor of Dublin(@LordMayorDublin) 's Twitter Profile Photo

Today just got even bigger for the Swifties out there!! ✨

We have got 2 standing tickets to the SOLD OUT Taylor Swift Era's tour on Saturday 29th June in the Aviva Stadium, now available as part of The Lord Mayor’s Charity Ball Auction. 🎉

Today just got even bigger for the Swifties out there!! ✨ We have got 2 standing tickets to the SOLD OUT Taylor Swift Era's tour on Saturday 29th June in the Aviva Stadium, now available as part of The Lord Mayor’s Charity Ball Auction. 🎉
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